National Paracycling Champion Tom Staniford has an extremely rare condition which, until now, has puzzled his doctors. He is unable to store fat under his skin – yet has type 2 diabetes – and suffered hearing loss as a child. Now, thanks to advances in genome sequencing, an international research team led by the University of Exeter Medical School has identified Tom's condition and pinpointed the single genetic mutation that causes it.
Disability
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Most Topular Stories
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Advances in Genetic Sequencing Diagnose Paralympic Hopeful's Rare Condition
Disabled World News16 Jun 2013 | 4:15 pm -
Captioning Telephone
lifekludger9 Apr 2013 | 2:31 amThis Captioning Telephone allows you to “see” the phone calls you cannot hear. It comes with a large display screen and has free voice-to-caption service to produce the text for the captions. No special equipment is required to make it work*, though a high speed Internet connection is required. One good feature is the ability to save captions for future. The captioning function can be turned off and the Captioning Telephone will function like any other normal phone, including adjustable volume and an answer machine. [ via Coolest Gadgets & Firststreet online] * Some location… -
HBO Documentary Follows Beauty Queens With Special Needs
Disability Scoop16 Jun 2013 | 9:05 pmA beauty pageant just for girls with disabilities is the subject of a new documentary set to premiere on HBO. -
Want to Know How Talk to People in Wheelchairs? Start with Hello!
Do It Myself Blog - Glenda Watson Hyatt29 May 2013 | 6:49 pmEarlier today I read, on a major blog, an article about what never to say to people in wheelchairs. However, I will not dignify it with a link. Why? For two reasons: First, It assumes all people in wheelchairs have the same look, feelings and opinions. News flash! We are not a homogenous group. Second, it assumes all people in wheelchairs are angry, grumpy and bitter. Contrary to that assumption, some of us are happy and content individuals. We even have a wicked sense of humour! The article gave the genuinely curious reader nothing useful when approaching wheelchair people – as if we need… -
Amusement Park Faces Backlash Over Disability Access
Disability Scoop16 Jun 2013 | 9:03 pmA change to the way one amusement park accommodates visitors with disabilities is angering some families who say their kids are no longer able to enjoy a place that's supposed to be fun.
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A Deaf Mom Shares Her World
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What is Gone May Bloom Again
7 Jun 2013 | 6:31 amWhen my parents built their new house on Christie Lake 20 years ago, my mom discovered a peony plant coming up out of the blue between two newly planted bushes. To her surprise, she discovered it was the same peonies that she transplanted long ago to a different spot in the yard and the bush had died. The yard had been completely torn up and reshaped when the house was built. Twenty years later, the peonies continue to bloom each spring. It’s a reminder of hope– because just when you give up, or think something is over and done with, you can thrive and blossom yet again. -
Unwrapping Your Passion, The Iron Jen Radio Show
28 May 2013 | 7:08 pmEarly this morning, I shared one of my favorite topics, “Unwrapping Your Passion” on the Iron Jen Radio Show with Jen McDonough. The show was captioned live, enabling deaf and hard of hearing people to join in. Jen and I crossed paths over on Dan Miller’s site, 48days.net. I was inspired and fascinated by her journey to becoming an Ironman athlete and her family’s journey to pay off over $200,000 of debt. In June, Jen and her family will unleash their “debt free” scream on the Dave Ramsey Show. I’m pretty sure the scream will be so loud that deaf… -
A Test of Patience
25 May 2013 | 6:45 pmWednesday night, before heading to bed, I checked my flight schedule for Florida. “The plane leaves at 7:25,” I told Joe. I sank into bed early knowing that I’d have to get up at four a.m. to get ready. A nagging feeling crept up on me. I wanted to go downstairs and check the schedule one more time, but I was exhausted after two days on the road and three presentations. On the way to the airport, the nagging feeling returned. I took a look at the schedule and right then and there, my heart sank. 6:10. I was looking at the landing time previously, not the flight time. I was… -
Meeting Joel Osteen
14 May 2013 | 1:34 pmOne week ago, I was sitting at the table with my brother and sister-in-law talking about their upcoming move to Houston. Just weeks before, they were scheduled to move when Dennis had a heart attack and landed in the hospital. He ended up having bypass surgery and was in the middle of a painful recovery. Their son was going to drive with them but he had the possibility of starting work at a construction site. They were trying to figure out Plan B. Suddenly, I was overcome by a strong urge to go with them. At first, I tried to ignore the urge. I was in the middle of finishing a book and… -
You are Phenomenal and You Were Born to Win
11 May 2013 | 10:45 amI recently had the wonderful opportunity to attend the “Born to Win” workshop with Tom Ziglar (author of Born to Win with his father, Zig Ziglar) and Howard Partridge (Seven Secrets to a Phenomenal Life). I met both of them last fall at a Business Expo– what a dynamic duo! Tom was kind enough to read “Gliding Soles, Lessons from a Life on Water” which I co-authored with Keith St. Onge and he gave an endorsement. Although I’m a solepreneur with my speaking and writing business, I found lots of business gems from this workshop which applies to my work with…
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Disabled World News
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Social Media Sites Like Facebook Dramatically Increase Organ Donor Registration
18 Jun 2013 | 7:48 amThe Facebook effect: Social media dramatically boosts organ donor registration - Johns Hopkins researchers see 21-fold increase in a single day... -
Associated Health Risks of Eating Fast Foods
17 Jun 2013 | 11:42 amEating fast food more than twice a week is associated with weight gain and insulin resistance in young adults who are otherwise healthy. Young adults who eat frequently at fast food restaurants gain more weight and experience greater insulin resistance as they reach middle age according to a large multi-center study funded by the National Heart, Lung, and Blood Institute (NHLBI). -
Advances in Genetic Sequencing Diagnose Paralympic Hopeful's Rare Condition
16 Jun 2013 | 4:15 pmNational Paracycling Champion Tom Staniford has an extremely rare condition which, until now, has puzzled his doctors. He is unable to store fat under his skin – yet has type 2 diabetes – and suffered hearing loss as a child. Now, thanks to advances in genome sequencing, an international research team led by the University of Exeter Medical School has identified Tom's condition and pinpointed the single genetic mutation that causes it. -
Colorado Wildfires and People with Disabilities
16 Jun 2013 | 10:12 amThe Black Forest area of Colorado is located just a couple of minutes north of the City of Colorado Springs and at the time of this writing is still enduring a wildfire. The fire is now 55% contained, but is not the only wildfire in the area. -
Free Dental for Children with Autism Spectrum Disorder
16 Jun 2013 | 10:02 amNSU Offers Free Dental Service for Children with Autism Spectrum Disorder - University also providing specialized training for post-doctoral dental students to treat children with ASD at NSU's Baudhuin Preschool.
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ScienceDaily: Disability News
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Obesity associated with hearing loss in adolescents
17 Jun 2013 | 1:07 pmObese adolescents are more likely than their normal-weight counterparts to have hearing loss, according to results of a new study. Findings showed that obese adolescents had increased hearing loss across all frequencies and were almost twice as likely to have unilateral (one-sided) low-frequency hearing loss. -
Testing method promising for spinal cord injuries, multiple sclerosis
14 Jun 2013 | 5:28 amA medical test previously developed to measure a toxin found in tobacco smokers has been adapted to measure the same toxin in people suffering from spinal cord injuries and multiple sclerosis, offering a potential tool to reduce symptoms. -
Greater convenience and safety for wheelchair users
13 Jun 2013 | 8:20 amWith modern communication aids, users of electric powered wheelchairs can operate a PC and cellphone without human assistance. A new module is set to transform electric powered wheelchairs into communication hubs. -
New molecular-level understanding of the brain's recovery after stroke
13 Jun 2013 | 7:44 amA specific MicroRNA, a short set of RNA (ribonuclease) sequences, naturally packaged into minute (50 nanometers) lipid containers called exosomes, are released by stem cells after a stroke and contribute to better neurological recovery according to a new animal study. The research provides fundamental new insight into how stem cells affect injured tissue and also offers hope for developing novel treatments for stroke and neurological diseases, the leading cause of long-term disability in adult humans. -
Helping to restore balance after inner ear disorder
13 Jun 2013 | 7:41 amA new study makes the first attempts to design and test a vestibular prosthesis to help restore balance for those with Meniere's disease. Many disorders of the inner hear which affect both hearing and balance can be hugely debilitating and are currently largely incurable. Cochlear implants have been used for many years to replace lost hearing resulting from inner ear damage. However, to date, there has not been an analogous treatment for balance disorders resulting from inner ear disease.
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CRIN News Feed - Home - English
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MALAWI: Parliament to Change Marriage Age to 18
17 Jun 2013 | 7:01 am[15 June 2013] - Malawi is likely to settle for the Convention on the Rights of Child (CRC) marriage age of 18 following consultations the Ministry of Gender and Child Welfare embarked on to incorporate stakeholder's views to determine the right minimum matrimonial age after parliam -
MALI: Children in Mali conflict forced to fight, detained with adults and tortured
17 Jun 2013 | 6:43 amChildren in Mali, some as young as 13, who were recruited as child soldiers by armed groups or suspected of links with them, are now being detained by Malian forces alongside adults, where some say they've been tortured, Amnesty International revealed after returning from a four-week visit to the country. -
UK: MPs urge more action on female genital mutilation
13 Jun 2013 | 5:00 am[13 June 2013] - Female genital mutilation is not being properly tackled in the UK as police and social workers are afraid of being seen as politically incorrect, MPs say. Ministers are spending £35m abroad on ending the prac -
ARMED CONFLICT: Annual UN report on children and armed conflict shows thousands of children killed in Syria
13 Jun 2013 | 4:27 am[13 June 2013] - Thousands of children have been killed in the Syria uprising since March 2011, according to a new global UN report on children and armed conflict. Calling the toll "unbearable", the study said government forces and -
BELGIUM: Parliament poised to give children right to die
12 Jun 2013 | 6:11 amWhile the proposal has been met by strong opposition by religious groups, liberals and socialists appear to agree that age should not be regarded as a decisive factor in the event of a request for euthanasia.
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CRIN News Feed - Resources - News Home
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BANGLADESH: New law includes death penalty for adults if they use children in violent activities
18 Jun 2013 | 5:10 am[17 June 2013] - The Bangladesh Parliament passed a law on 16 June with provisions allowing the death penalty -
AUSTRALIA: Calls grow to release teenage asylum seekers in detention
18 Jun 2013 | 4:44 am[18 June 2013] - CALLS are growing for the release of teenage asylum seekers being kept in detention at Pontville, with critics fearing an inevitable violent consequence of keeping hundreds of boys behind wire. As tension escalates at the detention centre, many in the commun -
UNITED KINGDOM: Government bows to pressure on young carers' rights
13 Jun 2013 | 10:27 am[13 June 2013] - Young carers are to get new rights after the government accepted calls for an amendment to the Children and Families Bill. The change will give young carers a legal entitlement to assessment and support so that they have the same right to -
UK: MPs urge more action on female genital mutilation
13 Jun 2013 | 5:00 am[13 June 2013] - Female genital mutilation is not being properly tackled in the UK as police and social workers are afraid of being seen as politically incorrect, MPs say. Ministers are spending £35m abroad on ending the prac -
BELGIUM: Parliament poised to give children right to die
12 Jun 2013 | 6:11 amWhile the proposal has been met by strong opposition by religious groups, liberals and socialists appear to agree that age should not be regarded as a decisive factor in the event of a request for euthanasia.
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Do It Myself Blog - Glenda Watson Hyatt
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Remembering My Beloved Faith
12 Jun 2013 | 3:50 pmToday is three weeks since I had to let go of my beloved Faith. Sadness still hangs heavy on my heart and the tears flow easily. Faith was more than a pet to me. She was my constant companion, my friend, for seventeen years. Even when people weren’t around, she was. She didn’t mind my Glenda-ish or my jerky movements. She enjoyed her invigorating massages when I came home and she told me when she had had enough. Wednesday, May 15th, was the first (and, sadly, the last) time she didn’t greet me when I came home. Now coming home is not the same; there is no pure joy to greet me. Our lives… -
Want to Know How Talk to People in Wheelchairs? Start with Hello!
29 May 2013 | 6:49 pmEarlier today I read, on a major blog, an article about what never to say to people in wheelchairs. However, I will not dignify it with a link. Why? For two reasons: First, It assumes all people in wheelchairs have the same look, feelings and opinions. News flash! We are not a homogenous group. Second, it assumes all people in wheelchairs are angry, grumpy and bitter. Contrary to that assumption, some of us are happy and content individuals. We even have a wicked sense of humour! The article gave the genuinely curious reader nothing useful when approaching wheelchair people – as if we need… -
A Tribute to My Faith
26 May 2013 | 4:29 pmClick on image to enlarge If you enjoyed this post, consider buying me a cafe mocha. Thanks kindly. -
Yesterday I Lost My Faith
23 May 2013 | 6:42 pmYesterday, with unbelievable sadness, I had to give the last act of love and let my beloved Faith go. Something happened over the last week – I don’t know what – and she deteriorated quickly. The last couple of days she was in pain and suffering. Beyond gut wrenching. With her lying beside me on the couch, I did the most heartbreaking thing I have ever done. Faith was feisty and a fighter right to the end. Late afternoon on Wednesday, May 15th, 1996, my aunt placed a tiny 5-6 week old brown tabby kitten on my lap. Around 6:30 on Wednesday, May 22nd, 2013, Joanne from Until We Meet Again… -
My Summer Plans: Click, Sip and Connect
13 May 2013 | 2:06 pmNow in Week 2 of pumping iron, I am realizing this will likely be a slow process. The nightly jumpy legs and the vague aches are gone (for the most part), but I am still moving slower than a sloth. With this in mind, I’ve decided I am going to enjoy this summer locally without any crazy deadlines looming. I am going on as many photo wheels with my husband as we can handle. Possible locations include Holland Park (in our ‘hood), Central Park in Burnaby, New West Quay (although crossing the railway tracks in wheelchairs can get dicey when a wheel gets stuck), False Creek and Coal…
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Blisstree
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The STD Triage App That Lets You Anonymously Send Doctors Pictures Of Your Weird Rashes
18 Jun 2013 | 2:00 pmAll I've ever wanted is to be able to bother a doctor anytime I want without having to get up and now I can thanks to a Swedish smartphone app. I want to kiss technology so hard on the lips right now. More »The STD Triage App That Lets You Anonymously Send Doctors Pictures Of Your Weird Rashes is a post from Blisstree - Get tips on healthy living, work outs, wellness & health food recipes. Advice & news on mental health & healthcare.. -
Why I’m Really Glad Starbucks Is Making This Big Change
18 Jun 2013 | 1:20 pmFor once, Starbucks is making a change that does not involve increasing the drink size to a gallon per cup, or increasing all the caffeine exponentially, or something like that. More »Why I’m Really Glad Starbucks Is Making This Big Change is a post from Blisstree - Get tips on healthy living, work outs, wellness & health food recipes. Advice & news on mental health & healthcare.. -
The 10 Weirdest Places I’ve Breastfed
18 Jun 2013 | 1:00 pmMy daughter was glued to my boob from day one. She nursed every hour for the first several weeks of her life, and every two hours for the first year. Though we tried to get her to drink my milk from a bottle so other people could feed her, she would scream like we were forcing slugs into her mouth, except worse, because I imagine babies might actually like slugs. So after awhile we gave up and I decided to EBF (exclusively breastfeed), meaning I found myself in some pretty awkward public situations when baby had to nurse. More »The 10 Weirdest Places I’ve Breastfed is a post from… -
Texas Congressman Is A Weirdo About Fetuses, Wants To Ban Abortion After 20 Weeks
18 Jun 2013 | 12:00 pmRepublican Congressmen say the cutest things sometimes! By 'cute' I mean 'totally messed up and disturbing' and by 'sometimes' I mean 'why won't they shut up?' More »Texas Congressman Is A Weirdo About Fetuses, Wants To Ban Abortion After 20 Weeks is a post from Blisstree - Get tips on healthy living, work outs, wellness & health food recipes. Advice & news on mental health & healthcare.. -
Rihanna Reportedly Going To Rehab So She Can Get Over Chris Brown
18 Jun 2013 | 11:00 amAs we all could have easily guessed, there are many people who aren’t down with Rihanna and Chris Brown‘s reconciliation late last year. From Lena Dunham to (allegedly) Katie Perry to anybody who doesn’t believe in defecating in the eyes of women, the world was displeased. But even though they split, it’s still impossible to know how the most important person here feels about the situation: Rihanna. More »Rihanna Reportedly Going To Rehab So She Can Get Over Chris Brown is a post from Blisstree - Get tips on healthy living, work outs, wellness & health food recipes. Advice…
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Rolling Around In My Head
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Sign Here (updated)
17 Jun 2013 | 9:00 pmIn conversation with someone who reads my blog I was told that I tend to write fairly heavy blogs and that I should maybe 'lighten up' every now and then. I looked over my posts and agreed that the advice was solid. So today, I'm doing that.I was on YouTube the other day and one of the suggested videos which popped up was a song done in sign by and man named Mister Chase. He's a singer-signer-songwriter. He has two different pages, one for his own music and one for signed covers of songs. I really liked his approach to signing music as I thought he brought the joy of the music to life. I was… -
Handbook Rule A37R2
17 Jun 2013 | 2:12 amI broke disability rule A37R2.There is a restaurant that I've wanted to go to for a long time. I discovered it, accidentally, while browsing on the net. The web page showed pictures of a small, cosy and funky place. The menu - awesome. Then I noticed that it wasn't accessible. There's one step up into the place. Shit! As A37R2 clearly states: "Patronage will not be given to businesses which are not accessible." Personally I think this rule was made up to make it appear that we were boycotting places that we couldn't get into anyways. "I'll show you, I won't shop at your store which I… -
Red and White
15 Jun 2013 | 9:00 pmI want to write of strawberries.I saw a box sitting, in the sun, on a shelf, beside broccoli. The greengrocer must have been in a rush this morning. Maybe he'd slept in. Maybe he'd had one too many. Or maybe, this morning, he was just being careless, placing pears beside the cabbage, plums by corn and leaving zucchini looking lonely set off to one side. But it was the strawberries that caught my eye. A memory came bringing along with it, for the first time, a smile.Perhaps every Canadian has an attachment to strawberries. The hard cold winters, the long dark nights, the frozen fingertips that… -
By George
14 Jun 2013 | 9:00 pmI follow George Stroumboulopoulos' Facebook page as I think he posts some of the most interestingly 'talkable' stuff. He recently posted about 'right to die' legislation in Quebec. He has an active group of followers and the discussion is quite lively. I wanted to add in so I wrote:People need to learn the difference between disease and disability. The disability movement is VERY concerned about this. I am a wheelchair user. I work. I love. I have sex. I enjoy my life. Yet people say to me that 'they'd rather be dead than in a wheelchair' ... that translates almost literally into 'you'd… -
Granola
13 Jun 2013 | 9:00 pmPerhaps it was because I was feeling tired.Perhaps it was because I was feeling a bit defeated.But perhaps I found it awesome because it truly was.Our morning had been horrible. I woke up to Joe panic screaming that the bus was coming in 20 minutes. I had to get up, get showered, get dressed ... and Joe had to get my breakfast made and packed for me to have at the office, had to get dressed to help me go down to the lobby ... it was a mad rush. I made the bus with both of us panting. I'm not sure what the driver thought we'd been up to in those moments before we arrived in the lobby. But I…
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My Private Casbah
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The "Real Life" versus "Online" Dichotomy
12 Jun 2013 | 12:21 pmThink about this: I have an autoimmune disease. I can't touch or feel folks during certain times of the year, because I can get very sick from germs that they are carrying. I'm home bound for months at a time from various health problems. For example, a year ago I spent 4 months inside due to a upper respiratory infection that just wouldn't go away. Are my relationships less real, just because I don't/can't feel or touch the folks I love? In fact, it's the opposite. Those who care about me stay away from where I can feel or touch them, because they don't want me to get sick(er) during those… -
Someone should have told Ellen Sturtz what happens when your ass in public.
6 Jun 2013 | 11:58 amThis amused me to no end. I guess things didn't go as planned for that white privileged heckler who tried to silence her. This heifer had the nerve to later say that she was "taken aback" because after screaming and ranting at her, our First Lady actually approached her and spoke directly to her. I am astounded by the audacity of this woman to expect to be allowed to take over the event that people had paid to attend.This was at a private event in a private home, where Sturtz was a guest. Now, I know that we take courtesy and the rules of hospitality to a level that Northerners might… -
The Black Drag Queens Who Kept My Brother Safe
5 Jun 2013 | 5:18 pmI was on Tumblr today and I saw a post on some one's site that made me nostalgic. It was about drag queens who saved a 16 year old gay boy from being raped by a man who had drugged him. It really touched my heart and made me think about something from my childhood. I wrote the message below and then re-blogged it on my site. I decided to share it here, because I don't have all of the same followers on both blogspot and tumblr.We grew up in New Orleans. When my brother was barely a teen, he was already a professional jazz musician who had traveled overseas a couple of times. He was much too… -
Port City Race Trends
31 May 2013 | 7:47 pmSo, this article was on Jezebel today:I'm Biracial and That Cheerios Ad Is a Big Fucking Deal. Trust Me.I'm African-Black-Blackfoot-Crow-French-Irish. My child is all of that plus Italian. My nieces are all of that plus Puerto Rican. Two of my first cousins are also Bolivian. Still we resemble each other quite a bit. If people look past the color of our skin, they might notice that, but they usually just get so excited (about "exotic" features and doing the whole "biracial people are beautiful" nonsense) or demanding that I break down a hundred years of ancestry for them.I do think it's rude… -
Why People Without Disabilities Should Listen More And Assume Less
29 May 2013 | 3:30 pmTHIS IS BOGUS. It contributes to the problem it SUPPOSEDLY addresses. It takes away the agency of People With Disabilities. We are free to define our experience in any way that we want.I have arthritis. Sometime, my knee swells up. Of course I can refer to it as my arthritic knee. I have schizophrenia. It's ridiculously ableist to claim that I can't refer to MY experiences as schizophrenic episodes.Instead of making up ridiculous stuff like this picture that contributes to and exemplifies ableism in societies. The creator and the person who shared this should familiarize themselves with what…
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Sunny Dreamer -- We write to taste life twice...
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Revisiting the Pleiades
15 Jun 2013 | 12:00 amOne good thing about poetry is it's helping me get back into the habit of blogging/writing. I never really paid attention before now to how easy it is to break a habit and how hard it is to reinstate a good one. (Sometimes it's called, simply, laziness. Other times, tiredness.) But now, I am trying to return to a habit that's been important to me and trying to be semi-original about it. And poetry right now seems to be the easiest way to get started when I try to blog. Like today, for example; I want to revisit one of my favorite invented forms of poetry found on Shadow Poetry. It's called… -
2013's Word of the Year: FORGET
20 Dec 2012 | 12:00 amI thought today I would look forward instead of back, like I have been doing mostly with this countdown. This past week I have been thinking a lot about my word for 2013. I really like the idea of having a focus word for the year because 1) that one word encompasses what I hope the coming year will bring. 2) One word is really to remember, and it relieves me of the guilt I normally would feel upon forgetting and failing, by year's end, to accomplish the goals I set. For one reason or another I could never remember the goals my parents encouraged me to set every New Year's, but throughout this… -
Rainbow Crow
10 Feb 2012 | 12:00 amI wish I had more ummph today, but after what this week has brought me, I'm lucky I'm posting today at all. I'm really tired, but I'm trying to stick to my goal of blogging everyday this week, from Sunday the 5th to Sunday the 12th. I'm afraid all I'm up for posting today is a Native American myth I found over at S.E. Schlosser's site. I found it in her "Winter Tales" section. Rainbow Crow (Lenni Lenape Tribe) retold by S. E. Schlosser It was so cold. Snow fell constantly, and ice formed over all the waters. The animals had never seen snow before. At first, it was a novelty, something to play…
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brokenclay.org/journal
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We All Look Alike
4 Jun 2013 | 2:39 pmI guess life must be pretty calm (read: boring), because all I have these days are gym stories. Toward the end of my workout the other day, a woman who sees me there most every week comes up to me, smiling. “I just saw you in the parking lot,” she says. Since I’ve been in the gym for an hour and a half, I’m a little confused by this. “Oh, yeah?” I say. “Yes, getting out of your van,” and she lowers her hand, like a wheelchair lift. “Must have been some other woman in a wheelchair,” I say. “I don’t have a van. And I… -
Wouldn’t Want to be Passed by a Wheelchair
10 Apr 2013 | 6:04 pmI go to the gym to lift weights twice a week. My gym is not a fancy expensive health club with espresso machines and Jacuzzis and lots of Spandex; it’s also not a black iron gym filled with big men, lots of weights, and chalk dust. It’s a city recreation center, so it caters to a diverse population. Every couple of months, on Tuesday mornings, a new group of young men (and the occasional young woman) turn up. I don’t know if they’re in the Navy, or trying to get into the Navy, but they have something to do with the Navy, and they’re trying to meet some sort of… -
Disability Blogs—My Feed List
30 Mar 2013 | 11:09 amOnce upon a time, blogs had blogrolls. If you had a blog, you would include a list of blogs you thought would be interesting to your readers in a sidebar on her page. After a while, if you had a lot of blogs to keep track of, you learned about feed readers. Back then, there were many feed readers, but gradually Google came to dominate the feed reader space. Google Reader allowed you to create a sidebar widget that linked to new posts from the blogs on your list. Then Google Reader changed its API (as it is wont to do), and now you could only provide a list of the blogs on your sidebar, which… -
My New Favorite Airline: Southwest
8 Mar 2013 | 7:20 pmIn the frequent travel game, one of the things you hear all the time is that you need to pick an airline and stick with it. Only by consistently traveling with the same carrier will you be able to achieve wonderful things like 4 extra inches of legroom and the occasional upgrade to Business Class. Since I’m near Denver, I picked United, and stuck with them for years, as the bar to get frequent flyer status got higher and higher and the perks got fewer and fewer. Occasionally I had to fly other carriers. Delta was fair. Alaska and Frontier were pretty good. USAir was uniformly ghastly. -
Overpacking and Repentance
26 Feb 2013 | 7:59 pmLast summer and fall I was traveling regularly to Phoenix for a week at time. Phoenix had its special packing challenges, most notably outside temperatures well into the 100s, and inside temps as low as 65, but I eventually figured out what to pack (layers, thick wool socks and riding boots). Now I am traveling regularly to the Washington DC area for a week at a time. DC is warmer in general than Colorado is, but much more humid, so weather in the 50s can be pretty miserable (here at home, that’s light sweater weather). Last week I panicked about being too cold on my trip. Here’s…
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Disability Studies, Temple U.
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Guest post: "Krip-Hop Nation’s Seed Growing Roots in Africa," by Leroy F. Moore Jr.
5 Jun 2013 | 9:54 am[Note: Leroy F. Moore Jr. of Berkeley, California, USA, is a Black disabled poet, activist, journalist, and founder of Krip-Hop Nation, an international collective of musicians with disabilities. He offered to write up an note about his activities for Disability Studies Temple U., and I said "yes, please!" Enjoy. --PLR] Zululand Gospel Choir performing in a studio Since I was 10 years old -
David Moylan (LOC)
17 May 2013 | 12:48 pmDavid Moylan (LOC) Originally uploaded by The Library of Congress"THE ARMLESS JUDGETen years ago David Moylan was a railroad switchman working in a Cleveland yard. A switch engine running in the dark without a headlight ran him down and cut off both his arms. That would have settled the fate of most men. And it did settled Moylan's fate--but not in the usual way. He firmly declined to pass -
BADD 2013: Bad History Doesn't Help
30 Apr 2013 | 12:10 pmIt's that time of year again--for the eighth May in a row, it's Blogging Against Disablism Day, hosted by the ever-excellent Goldfish. How many things last eight years online, with hundreds of quality contributions, from bloggers all over the world? This has. We've contributed to BADD every year--sometimes with a long essay, sometimes with a calendar, sometimes with a paragraph, sometimes -
In its Eighth Year: BADD 2013
15 Apr 2013 | 6:59 amJoin us and many, many other disability bloggers for BADD 2013, hosted once again by the excellent Goldfish. This will be our eighth year in the swarm, meaning we've never yet missed a chance to join in. Our previous contributions: 2006 2007 2008 2009 2010 2011 2012 -
"The Price of Coal" (23 March, Swansea)
4 Mar 2013 | 9:20 amFrom: http://www.dis-ind-soc.org.uk/en/events.htm?id=1Roadshow: The Price of Coal Sat 23rd March 2013 National Waterfront Museum, Swansea Disability history roadshow at the National Waterfront Museum, Swansea, 23rd March 2013 (10am–4pm). Click here for the day's programme (PDF) Click here for the flyer (PDF) Did you or a member of your family work in the coal industry in south Wales?
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Fred's Head blog from the American Printing House for the Blind
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UPDATED! Oldies but Goodies: The "Established" APH Product Series
17 Jun 2013 | 8:00 amby Monica Turner As a Field Services Representative, one of my responsibilities is to go to conferences and exhibit APH products. Oftentimes I will display many of the new and exciting products that we have to offer in order to provide consumers an opportunity to see the items firsthand before making the decision to purchase them. While it is wonderful that APH has been producing so many new products over the past several years, I find that I'm not often able to take along as many of the wonderful, older products that we still have available. We give you information about our new products… -
UPDATED! APH Braille Book Corner: Recreational Braille Titles Available from APH!
17 Jun 2013 | 7:15 amThrough the APH Braille Book Corner, we are offering a number of recreational books in braille (Quota funds can be used). Each of these titles was originally transcribed and produced by APH for the National Library Service which has graciously granted permission for this offering. As usual, these titles have been added to the APH Louis Database where you can find thousands of titles produced in accessible formats. To order any of the following books, please note the catalog number and enter that number into our shopping site. Click this link to enter the APH Shopping Site:… -
A #STEM-ulating Annual Meeting this Year!
6 Jun 2013 | 6:58 amEvery year in October, members of the blindness community meet in Louisville, Kentucky to learn about innovations in our field, connect with colleagues, and celebrate the past year's achievements. This year, APH will host the 145th Annual Meeting of Ex Officio Trustees and Special Guests on October 17-19. It will be held at the Hyatt Regency Hotel in beautiful downtown Louisville. The theme for this year's meeting is "The Universe at Our Fingertips: STEM-ulating Products for Life." This reflects APH’s commitment to provide cutting edge tools for students and adults engaged in all areas of… -
APH News: June 2013
3 Jun 2013 | 11:58 amAPH News: June 2013 Exciting New APH Products Announced! Read on to learn about these new products - now available! APH Spring Fever Sale New! STACS: Standardized Tactile Augmentative Communication Symbols Kit REVISED! Reach for the Stars, Planning for the Future REVISED! The Good Tactile Graphic DVD and Booklet NEW! Venn Diagram Template Kit APH Braille Book Corner EPAC Brings Home a Winner During Derby Week The Educational Products Advisory Committee (EPAC) 1st Row: Madeleine Burkindine (KS), Dorinda Rife (MA), Stephanie Bissonette (VT) 2nd Row: Collette Bauman (MI), Jim Downs (GA), Paula… -
2013 Inductees into the Hall of Fame for Leaders and Legends of the Blindness Field Announced
17 May 2013 | 9:18 amMartha Louise Morrow Foxx and Laurence Clifton Jones Inducted into Hall of Fame The Hall of Fame is dedicated to preserving the tradition of excellence manifested by specific individuals through the history of outstanding services provided to people who are blind or visually impaired in North America. It is housed at the American Printing House for the Blind (APH) in Louisville, Kentucky, but belongs to all. The ceremony to induct Ms. Foxx and Dr. Jones, connected through their work at Mississippi’s Piney Woods Country Life School, will take place on Friday evening, October 18, 2013 in…
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JAN'S GROUP HOME SUPPORT for caregivers
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Packing for an Overnight Shift
18 Jun 2013 | 10:50 pmWhen heading out the door for an overnight shift in a group home, you don’t want to be thinking about what you forgot. Being prepared is not just for boy scouts; it is for all staff who work in group homes, especially for overnight support staff. Having a bag that is always packed for an overnight shift will make it easier. Items for an Overnight Bag When preparing for a shift that requires working through the night it will be necessary to pack a bag. When choosing a bag, keep in mind where the bag will be stored out of reach of the residents. Buying a second toothbrush and other items that… -
How to Stay Awake on the Overnight Shift
21 May 2013 | 11:41 amI will be doing online training presentations for The Work Performance Group. This post contains my notes and the link to my first online training video How to Stay Awake on the Overnight Shift. There are some of you who are interested in this information because you are new to overnights and others of you are experienced at overnights but looking for some more tips on staying awake. I’m sure there will a little something for everyone in the video. I will be teaching on the following areas: Importance of staying awake First overnights Preparing for overnights Tips for staying awake The… -
Bowl Commercials are Super
4 Feb 2013 | 2:04 pmFor those who worked in a group home on the Sunday of the big game you may not have seen all the super commercials last night. The highlights of the game are easy to find but everyone knows the best part of the biggest football game of the season are the commercials! The residents may not have been interested in the super bowl game or maybe they had staff who needed to tend to other residents in the home so the commercials may have been missed. If the residents or the staff are real fans of the commercials not only can you see the ones from 2013, you can see the ones from the previous games… -
Valentine’s Day in a Group Home
3 Feb 2013 | 9:56 amSome staff may be excitedly planning for a Valentine’s Day celebration with a special someone. Others are getting ready for their children’s Valentine’s Day party at school. There are some who dread the day because of lost love or no love in their life. Disabled people living in group homes often don’t have anything to look forward to with family or anyone else in their lives. Often they have never had love in their lives. They are often painfully aware of the holiday because residents are exposed to Valentine’s Day ads, promotions, and decorations. As group home… -
Assisted Living Home Closed Down
31 Jan 2013 | 7:53 pmI was reading about an assisted living home that was closed down in Tucson, AZ. It saddened my heart thinking about the residents and the alleged abuse. The mother and son are accused of neglect and abuse. In a glitch in the law, the son could live in the home and help out as long as he was not caring for the residents. It was not a requirement to check his background and this put these vulnerable people at risk. According to the Arizona Daily Star, the son had these charges: September 1996-he sentenced six years in prison in September 1996 after pleading guilty to armed robbery and two…
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lifekludger
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Jeenee smartphone app with call centre
31 May 2013 | 6:30 amJeenee grants wish of independent living to people with disability | eHealthspace A new smartphone app and call centre will be funded by a not-for-profit telco in an innovative business model designed to help people living with disability achieve independence. Jeenee [via link] Related posts: SGD interface for mobiles wins on Inventors More kludging required as Research Centre Rejected Media Centre Voice Reccognition -
Lifekludger Responds – Stylus choice
22 May 2013 | 11:25 pmVia Email – On 10 May 2013 15:58, MS writes: Hi! Just came across your blog while doing some research for a stylus for my 8 year old. He has severe cerebral palsy, but is just starting to use a mouth stylus to access the ipad. I was thinking that maybe a head stylus would be better…but noticed you use the mouth. Can I ask why??? Hi MS I tried a head pointer early on (like 25years ago) and a dentist fitted moulded mouth grip for a stick back then too. I’d say the #1 reason I use a mouthstick is it’s the least intrusive to my life and it also offers most… -
X-Mouse Button Control Utility
11 Apr 2013 | 2:58 amX-Mouse Button Control is a Windows application to remap your mouse buttons and expand the capabilities of your mouse! Via: highrez Related posts: Wireless Foot Mouse Mouse as a glove Camera Mouse -
Captioning Telephone
9 Apr 2013 | 2:31 amThis Captioning Telephone allows you to “see” the phone calls you cannot hear. It comes with a large display screen and has free voice-to-caption service to produce the text for the captions. No special equipment is required to make it work*, though a high speed Internet connection is required. One good feature is the ability to save captions for future. The captioning function can be turned off and the Captioning Telephone will function like any other normal phone, including adjustable volume and an answer machine. [ via Coolest Gadgets & Firststreet online] * Some location… -
Wheelchair-accessible version of the NYC Taxi
1 Apr 2013 | 6:14 pmA universal, accessible taxi fleet is something to aspire to, and IMHO Mayor Michael Bloomberg’s push to standardize the NY city’s taxi fleet with a single, universal vehicle is to be applauded. This Nissan vehicle looks the ticket. Though I ‘m not sure how most electric wheelchairs would fit in lengthwise. I look forward to seeing a demonstration on something other than a manual push chair. Here’s video of how the vehicle functions from Nissan’s youtube channel. via Part Man Part Car blog and details of Nissan debuting the wheelchair-accessible version of the NYC…
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Rolling Rains Report
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Disability & Employment
6 Jun 2013 | 11:21 amFrom Takeaways from Last Week's Inclusive Workforce SummitCollaborating with the U.S. Business Leadership Network and Delaware Gov. Jack Markell, 2013 chair of the National Governors Association (NGA), the Council cohosted this unprecedented gathering to solicit promising employment practices and lessons on public-private partnerships from the corporate and foundation attendees. This information will be part of Gov. Markell's policy "blueprint" that he will provide to his NGA colleagues to help increase equity in employment of individuals with disabilities. The governor's signature initiative… -
Updated Guidance Regarding Employer Accommodations for Cancer, Epilepsy, Diabetes and Intellectual Disabilities
5 Jun 2013 | 11:28 amFrom: National Law Review, June 5, 2013:The Amendments to the Americans with Disabilities Act (ADAAA) broadened the scope of physical or mental impairments which would be considered to be disabilities under the Americans with Disabilities Act (ADA). On May 15, 2013 the EEOC issued four separate "informal" guidance documents relating to cancer, epilepsy, diabetes and intellectual disabilitiesIt is important to remember that since the ADAAA, the focus has been less on whether a condition is a disability and more on the interactive process to determine reasonable… -
Design for All Interview: GVAM shares its expertise with the museum sector in Brazil
4 Jun 2013 | 10:42 amAccording to GVAM, the accessible virtual museum guide and Design for All Foundation award finalist 2013, Brazil is currently experiencing a major cultural drive. With this in mind, José Pajares, GVAM's Researcher and Product Director recently visited Rio de Janeiro to investigate approaches to implementing new technologies and accessibility in Brazilian museums. In an interview to share his experiences with the GVAM team, he notes how he was struck by the country's strong academic tradition in museology, with, for example, 12 specialist faculties dedicated to the topic. As… -
Housing for People with Disabilities
3 Jun 2013 | 11:36 amFrom http://www.fairhousingnc.orgOn June 4, 2013, the U.S. Department of Housing and Urban Development (HUD) issued new guidance to "encourage participation in state efforts" to assist individuals with disabilities who are "moving out of institutions and into [community-based] housing." The guidance, titled "Statement of the Department of Housing and Urban Development on the Role of Housing in Accomplishing the Goals of Olmstead," is part of HUD's efforts to ensure compliance with the U.S. Supreme Court decision Olmstead v. L.C., in 1999, which held that unjustified segregation… -
Universal Design Summit 5: Reflections from Universal Design Partners
2 Jun 2013 | 11:11 amAt Universal Design Partners you can find a good report on Universal design Summit 5:Moving ForwardSo the point of taking the time to reflect on what we've learned at UDS5 was the importance of us understanding that we're not only trying to make homes usable and safer for individuals, but we're trying to make a dent in our communities and in our culture (just as others are trying to do in their communities). The joy of walking around town, buying things at local businesses, and participating in leisure activities are important parts of our lives. Universally designed places, products, and…
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Pipecleaner Dreams
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This Doesn't Surprise Me
18 Jun 2013 | 2:00 amAnne Belanger was heartbroken when she discovered her son — who uses a wheelchair — had been placed off to the side in his Grade 2 class photo.Check out Ms. Belanger's story here, and then go read one of my very early blog entries. It's obvious that in the last 8-10 years, and I'm sure longer than that, nothing has changed. Oh, we might see little victories here and there for our children with disabilties, but the overall attitudes are still the same. Very sad... -
Yet Again
17 Jun 2013 | 2:00 amLife changes yet again today. I'm not ready for it...When Ashley moved to our state's Developmental Disabilities Medicaid Waiver, she became eligible for many services, one of which is a personal care aide through an agency. In the past, Ashley has had what is called a 'consumer directed' aide, a person that I would seek out and hire. But now, we are relying on an agency to do the seeking and hiring.Several other families referred me to a specific agency, saying they were really good and worked hard to find an aide that was the best match for your family. I want to… -
Be My Brother
13 Jun 2013 | 2:00 amThis is one of the films from the Sprout Touring Film Festival. It is well worth nine minutes of your day, I promise!A young man's charm and charisma challenges the prejudices of a stranger at a bus stop. Be My Brother stars aspiring actor Gerard O'Dwyer as Richard, a young man with Down syndrome. His acting practice while waiting for the bus is meant to entertain himself and ultimately the others at the bus stop. When he impacts on the stranger’s world, he also impacts on the heart and mind of someone else close by. Be My Brother won the top prize in Australia's TropFest Film… -
Special Exposure Wednesday
12 Jun 2013 | 4:16 amWhenever we are listening to the 60's channel on the car radio and the song "Build Me Up, Buttercup" comes on, Ronnie collapses into a fit a giggles because of what is displayed on the radio screen... -
A Retrospective
11 Jun 2013 | 2:00 amAhh, another year of school draws to a close. It's been a very good year for both Ronnie and Ashley.Ronnie did a 5 month job internship and his employers raved about the quality of his work. His grades this year have been fine, and he is very well liked and respected by his peers. His athletic abilities really make him a standout at school, and both disabled and non-disabled peers love to watch him play basketball. If I could change anything about school it would be to decrease the drama which seems to follow one girl around, a girl that Ronnie has always been convinced he madly loves. One of…
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DISABILITY NEWS - Google News
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Disability benefits program for federal workers reported rife with waste - Fox News
17 Jun 2013 | 9:27 pmDisability benefits program for federal workers reported rife with wasteFox NewsThe series documents many cases of apparently healthy young federal workers feasting at the disability trough. One ran marathons while collecting disability. Another hauled in $142,000 in disability payments for a neck injury – all while buying a boat -
Miss Iowa says disability doesn't define her - USA TODAY
18 Jun 2013 | 8:35 amMiss Iowa says disability doesn't define herUSA TODAY"One of the reasons I'm doing this is to prove that people with disabilities are just like everybody else, and they can accomplish things just like everybody else," she said. "I'm going to be just like any other Miss Iowa and do the best I can to and more » -
In NYC, A Play Festival Spotlights Stories Of Disability - NPR
18 Jun 2013 | 12:42 pmNPRIn NYC, A Play Festival Spotlights Stories Of DisabilityNPRIke Schambelan doesn't like thinking about disability, and he's guessing you don't either. "We hate it. We do not want to see it," he says. "Personally, I want to see it least in myself, second in my wife, third in my cat and fourth in you and all and more » -
Disability campaigners celebrate 'victory' after government rethink over plans ... - The Independent
18 Jun 2013 | 10:30 amThe IndependentDisability campaigners celebrate 'victory' after government rethink over plans The IndependentDisability campaigners are celebrating a “victory” after the government announced it would look again at controversial plans to make it more difficult to claim disability benefits. The Department for Work and Pensions said this week that it would run Here's a chance to fight for disabled people's mobilityThe Guardianall 2 news articles » -
Fraud, abuse in the federal disability program? - Fox News
18 Jun 2013 | 9:07 amFraud, abuse in the federal disability program?Fox NewsTaxpayers are shelling out billions of dollars in federal disability payments but the recipients in some cases or anything but disabled. In conjunction with the Washington examiner correspondent -- cal where looks at a broken compensation model. She DE FACTO RETIREMENT? Report: Waste Rampant in Federal Disability ProgramBayoubuzzall 3 news articles »
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Walking is Overrated
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NZ teen sells advertising space on his wheelchair
15 Jun 2013 | 12:37 amCheck out the always-ballsy Keegan Lewis, selling advertising space on his power wheelchair: Keegan Lewis is lending advertising space on his power wheelchair in order to raise funds to acquire an all terrain wheelchair. Keegan is a 17 year old teenager who is about a lot and who stands out so your rest assured that your material will be seen! What an awesome idea! The money raised from the advertising will go towards funding Keegan’s off-road wheelchair. -
The “Wheelchair Symbol”: Reinvented
10 Jun 2013 | 12:28 amHey Len, you see this? In coming months, as parts of New York City continue to rebuild after the destruction caused by Hurricane Sandy, observant citizens may notice a small change in their neighborhoods. In parking lots and on street signs, instead of the old International Symbol of Access–the ubiquitous white-on-blue icon of a figure seated in a wheelchair–they’ll find something new. The new thing will look much like the old thing, but there will be one key difference. The figure on the sign will be wheeling himself. -
My Gimpy Life: A fantastic new disability TV show
25 May 2013 | 1:49 amThis is really great. Also: the star of the show, Teal Sherer, is fundraising to help make Season 2 a reality. You really ought to visit her Kickstarter project and donate. I just did. -
Nightmare over abused son
24 May 2013 | 10:42 pmStuff.co.nz: The Nelson District Court case heard that four of the house support workers who worked under Ericson said they saw her call him names including an “animal” and “inhuman”. They testified she pulled the boy’s hair to subdue him and they had seen her lose control and lash out at the boy. The workers spoke of a culture of fear where they risked their jobs if they spoke out. Ericson told them: “What goes on in the house stayed in the house”. What’s fascinating is how little anyone will say about any of this. It’s almost like… -
When disabled molehills become media mountains
24 May 2013 | 10:41 pmPhilip Patston: Last Friday two colleagues and I were booked on Air NZ 461 from Auckland to Wellington. My power wheelchair malfunctioned before we checked in and, because of the time taken to try and fix the problem, we arrived three minutes late to check in and, of course, the flight was closed. As we explained to the ground staff member at the special assistance desk the reason why we were late and enquired whether an exception could be made, we were “told off” by the staff member for being late and, we felt, rudely told we would be transferred onto the next flight. This flight…
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Low Visionary: accessible information, communication and engagement, disability rights, web accessibility
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Disclosing disability during job search
3 Jun 2013 | 5:40 pmA little while ago someone asked me about disclosing their disability when applying for a job. The answer I gave was focused on being in control of the process of disclosure, of making sure you choose the time and the place to disclose, and of disclosing in a positive way. Since then I have been thinking some more about a problem which worried me a good deal when I was setting out on my own career. I took a variety of approaches, sometimes disclosing, sometimes not, and occasionally lying, which I do not recommend under any circumstances. Disclosure is individual The difficulty about… -
Digital workplace accessibility
8 May 2013 | 3:44 amA blog for Global Accessibility Awareness Day The purpose of this day, May 9, is to get people talking, thinking and learning about digital (web, software, mobile, etc.) accessibility and users with different disabilities. In New Zealand consideration of web and digital accessibility most attention is paid to public-facing websites that offer public information and services. We need to broaden the discussion, as digital applications have penetrated most areas of our daily life, accompanied by accessibility questions. The workplace is increasingly digital. Some years ago I wrote an article for… -
Women, disableism and literature
30 Apr 2013 | 3:04 pmIn my last blog post I analysed why disabled women are invisible in New Zealand. This time, since I am joining other bloggers around the world on Blogging against Disableism Day, I have selected a subject which, as a disabled woman, is dear to me. Being denied something which is generally of value to others is disableism, (discrimination,) at work, intentional or not. This is particularly true for those of us born with disabilities growing up. Children and young people as they grow see similar life experience to their own life experience reflected around them through all kinds of media. It… -
Disabled women Invisible in New Zealand
23 Apr 2013 | 9:38 pmSeveral events lately have caused me to reflect on the invisibility of disabled women in New Zealand, and to think about how that might change. This year is the 120th anniversary of women’s suffrage in New Zealand. The Women’s Studies Association conference will be held in Wellington this weekend. I won’t be attending. What follows explains why. Interests and rights neglected The interests and rights of disabled women have been neglected by the women’s movement and successive New Zealand governments for many years. In my long history of working in the disability world, and of… -
Tribes at Circa
21 Apr 2013 | 8:54 pmYesterday we attended Tribes at Circa theatre in Wellington. I nearly didn’t bother to go, but I am so glad I did. The play is about Billy, a young deaf man and his rather dysfunctional family and other relationships. I love theatre, and I particularly love plays that make me think, make me laugh, and leave me feeling satisfied. Tribes met all those requirements. It is about finding a “voice”, as each of us needs to do, and belonging. But it is also about being Deaf as opposed to deaf. Tribes scrutinises identity and the ways we communicate with and understand each other on deeper…
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I hate stairs
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A system for tracking personal care hours
8 Jun 2013 | 3:01 pmOne clerical duty that I have, being a person who uses personal care attendants (PCAs), is keeping up with the hours worked so that I can verify that the timesheets we submit to my counselor are correct. For a long time, I didn’t keep my own records, but every now and then, there’s a reason to go back and see who worked when and my system lets me do that fairly simply. In this post, I’m going to explain how I track my PCA hours and why I track them this way. Tradeoffs I’ll save you some time reading this post by telling you what my system isn’t good for. If you like spreadsheets and… -
3 apps that make everyday computer use less annoying for people with disabilities
11 Apr 2013 | 5:19 pmI absolutely love when I find products that give me better access to stuff I want to do without being over-priced (have you ever looked at the cost of even basic medical and disability related products? Sheesh.). I’ve been using three apps on my Mac for a while that have made some everyday tasks, like saving passwords, typing email addresses, and launching apps faster and more pleasant. Alfred I just can’t say enough good things about Alfred. Not only does it give me the satisfaction of pretending like I’m a millionaire crime fighter with a wise and loyal butler, it also… -
Demo of the Chubon Keyboard and HippoRemote Pro
13 Jan 2013 | 3:08 pmBackstory: More efficient typing with the Chubon keyboard layout -
More efficient typing with the Chubon keyboard layout
11 Jan 2013 | 10:34 pmIn my quest for finding an acceptable alternative method for typing, I’ve discussed the onscreen keyboard, iPhone remote apps, voice recognition software, and one really psychedelic desktop app. Now, I’m going to make the case for an alternative keyboard layout. That is, a non-QWERTY layout. But before we do anything drastic, let’s think this through. What’s wrong with QWERTY? Well, I’m not passing a moral judgement on it, but it’s just not very efficient. Just ask any Dvorak user. These strange people re-map their keyboards so that the letters are in a… -
Strangely Enough
11 Jan 2013 | 3:32 pmby Phillip Parris Now, why do people do the things they do? I don’t think I will ever find the answer to this riddle. Standing tall as a person with a disability (metaphorically speaking) I can tell you that we are noticed in public, but don’t think we don’t notice how weird you are. People seem comfortable enough to do the strangest things to disabled people, I have yet to figure out why. I was sitting in Barnes & Noble enjoying a nice refreshing cup of iced coffee while reading the book Fight Club. I was rather pleased with the concept of the book and enjoyed being…
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Disability Scoop
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For Those With Autism, Sound Of Human Voice May Be Unpleasant
18 Jun 2013 | 9:01 pmNew research may help explain why individuals with autism often fail to grasp the social and emotional elements of speech. -
Viral Photo Sparks Debate About Inclusion
18 Jun 2013 | 11:13 amA second grade class photo is stirring outrage online after a student who uses a wheelchair was depicted sitting apart from his peers. -
Dirty Air May Double Autism Risk
17 Jun 2013 | 9:01 pmExposure to high levels of air pollution during pregnancy may double the chances that a child will have autism, a team of Harvard researchers said Tuesday. -
HBO Documentary Follows Beauty Queens With Special Needs
16 Jun 2013 | 9:05 pmA beauty pageant just for girls with disabilities is the subject of a new documentary set to premiere on HBO. -
Amusement Park Faces Backlash Over Disability Access
16 Jun 2013 | 9:03 pmA change to the way one amusement park accommodates visitors with disabilities is angering some families who say their kids are no longer able to enjoy a place that's supposed to be fun.
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Colorado Springs Social Security Disability Lawyer Tomasz Stasiuk
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Social Security disabled adult child benefits
10 Jun 2013 | 4:00 amNeed help on your Colorado Social Security disability case? Contact lawyer Tomasz Stasiuk on http://www.stasiukfirm.com/ Many aging parents take care of their disabled children well into adulthood. These children often have little or no earnings which means they may not qualify for Social Security Disability Insurance (Title 2 benefits) on their own earnings. When they apply for Social Security disability, they are told they have not worked long enough (or do not have enough “quarters”) to qualify for Social Security disability benefits. This results in the children applying for… -
Social Security disability for kidney disease
5 Jun 2013 | 1:29 pmNeed help on your Colorado Social Security disability case? Contact lawyer Tomasz Stasiuk on http://www.stasiukfirm.com/ Kidney disease & renal failure often qualifies individuals for Social Security disability benefits. The fatigue, dialysis, and memory issues can make any kind of work nearly impossible! One of the fastest ways to be approved for Social Security disability benefits for kidney disease is if your condition meets the requirements of Listing 6.00 for Genitourinary Impairments (information about children’s disability for kidney diseases is available at Listing… -
Social Security disability hearing wait times
28 May 2013 | 11:27 amNeed help on your Colorado Social Security disability case? Contact lawyer Tomasz Stasiuk on http://www.stasiukfirm.com/ How long you have to wait to get your Social Security disability hearing is one of the most common questions I receive in my Colorado disability law office. Each disability representative has his or her own experience with the wait times. However, you do not have to rely on knowing a disability lawyer to get the Social Security hearing wait times. Social Security has two reports showing you how long you may have to wait. Hearing wait times are from the time you file your… -
DT8 Social Security disability stages and appeals explained
9 May 2013 | 12:49 pmNeed help on your Colorado Social Security disability case? Contact lawyer Tomasz Stasiuk on http://www.stasiukfirm.com/ This week, Disability Tips looks at the stages and appeals in Social Security disability cases: application, reconsideration, hearing, appeals council and beyond! We also discuss: How long do Social Security cases take at each stage. What are your chances of winning Social Security disability benefits at each state / What percentage of Social Security disability cases get approved. When to request medical records for your Social Security disability case. Why medical… -
DT7 Social Security disability-Am I disabled if…
30 Apr 2013 | 9:09 pmNeed help on your Colorado Social Security disability case? Contact lawyer Tomasz Stasiuk on http://www.stasiukfirm.com/ I’m getting ready for the NADR national Social Security disability representative conference where I will be co-presenting a Social Security disability basics course. I have also been working on updating the FAQ (frequently asked questions) page and moving it over from the firm site to this site. The FAQ is changing its name to “Questions and Answers.” You can see it in the title bar above. One of the new features is the ability to suggest a question.
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Social Security Disability Blog
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How to Coordinate Social Security Disability with Social Security Retirement Benefits
8 Jun 2013 | 9:13 amA number of my Social Security disability clients are in their late 50′s or early 60′s and they have questions about the impact of disability payments on Social Security retirement payments and vice versa. I never felt comfortable offering advice about this issue because it falls into the area of financial planning, which is not my area of expertise. As a Social Security disability lawyer, I focus on representing claimants who have applied for disability benefits. Once those benefits are awarded, my representation ends, although I am happy to make referrals to professionals in… -
Disabling Traumatic Brain Injuries Can Arise from a Single Concussion
29 Apr 2013 | 6:20 pmConcussions have been in the news lately because stories about retired football players who are fighting cognitive loss, memory issues and severe depression that arises from brain injury. Athletes like football players and boxers often experience multiple concussions over many years, but damage to the brain can occur even after a single concussion. Not All Head Injuries Carry the Same Significance Scientists who study concussions and their aftermath have determined that not all head injuries are the same. Medical researchers in Europe studying brain injury in unhelmeted soccer players… -
New Information Available About Social Security’s Work Incentive Programs
17 Apr 2013 | 9:08 amSocial Security disability programs are running out of money. As such Social Security executives are looking for ways to reduce the outflow of dollars. One effort has been to tighten up eligibility standards. Claimant’s representatives throughout the country are reporting that ALJ approval rates are down. When cases are approved, judges are including directives in their decisions for SSA to review approved the approved claimant for medical improvement in one year or three years. SSA has increased and will continue to increase the number of continuing disability reviews for… -
Your Lump Sum Payment for Past Due Benefits may be at Risk from Child Support Collection Companies
3 Mar 2013 | 7:54 pmRecently the Social Security disability lawyer discussion group on LinkedIn contained an interesting thread about child support issues. Child Support and Social Security disability matters tend to draw a lot of attention from both custodial and non-custodial parents, so I try to write about any developments I note in this area. The poster on LinkedIn reported that she represented a claimant who was a non-custodial parent who owed several thousand dollars in past due benefits. The child support collection office (state not named) had apparently contracted with a private collection… -
Genitourinary Impariment Listing URL Updated
10 Feb 2013 | 10:12 amThe Social Security Administration has changed the URL for Listing No. 6.00 – Genitourinary Impairments. This is a change to the syntax of the Bluebook 1. Previously, the URL read as follows: http://www.ssa.gov/disability/professionals/bluebook/6.00-Genito-Urinary-Adult.htm This is now a dead link. The updated link now reads: http://www.ssa.gov/disability/professionals/bluebook/6.00-Genitourinary-Adult.htm I am not sure why SSA decided to get rid of the dash between “genito” and “urinary” but it did. If you had bookmarked the old link, now is the time to…
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Finding My Way: Journey of an Uppity Intellectual Activist Crip
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Sign of the Times?
18 Jun 2013 | 7:33 pmA shorty to get back in the swing of things... If anyone will even see this...Today I had a session with one of my two therapists & for the second time in a row I walked in & handed her my phone immediately. Cued up to a Facebook/G-Chat I wanted her to read so we could process them. Conversations that when I started seeing her 6 years ago I wouldn't have been able to have, because I didn't have the interpersonal skills to steer them anyway whatsoever. Now I can. I can be in control and express my feelings clearly. We can discuss if what I was able to express what asking for of that… -
Voice Recognition Sure Has Changed Since 1998
13 Dec 2012 | 4:48 pmMy grandparents brought us our first computer in 1990, an Apple IIGS, when I was in kindergarten. We were the only family we knew with a CD player and a computer. This post is totally making me feel old.The computer was really my computer. My parents wanted me to learn how to type. They thought it would be easier than writing. That turned out not to be true, as my lack of depth perception made finding keys on the keyboard really difficult. So much so that I used to get exempt from typing papers and was allowed to hand write them in middle school.By high school though I had spent enough time… -
Coming Back
6 Dec 2012 | 6:10 pmI've just been notified that I'll probably be hired probably within the next 6 weeks to do some writing, for money. So in preparation, I'm dusting off the cobwebs from this part of my brain, and rejoining the writing world. Over the last 6 months I've worked 2 jobs, and then 1, now 2 again soon (this 1 is connected to the job I had over the summer), stopped horseback riding unfortunately, and my psych meds, but continued with therapy, art therapy, massage therapy, my support group, and my personal trainer. I also briefly took up chair yoga, and was in a popular YouTube video at the latest… -
testing
26 Nov 2012 | 8:16 pmtesting with Google Voice for Android -
I Forgot Child Life Month!
5 Jun 2012 | 1:52 pmIt was back in March. Well anyway, I found this video, and I think it's totally awesome! To learn more about child life, click the tags below.
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HEALING THROUGH MULTIPLE SCLEROSIS
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Dry Heart
18 Jun 2013 | 5:20 pmdetail of sculpture, shells, ceramic, earth _____________________________________ I chose this accompanying image as it feels complicated and dry. Like me today. I woke with heavy tears behind my eyes and vestiges of a bad dream involving the well-being of my dog. I found it necessary to handle the question marks concerning what would happen to her should something happen to me. She is my family. I also have been lax in checking in daily with my designated friend who agreed to check in on me if she does not get an email in the morning. Meeting the daily challenges of a life in partnership… -
“There is no normal”
13 Jun 2013 | 9:28 amA wise woman left this small pool of words in the comment section of my last post. It made me sit up straighter and piqued my interest As Truths (with a capitol ‘T’) tend to do. There it stands alone: “THERE IS NO NORMAL”. Never really has been, after all.. just stuff we find solace in thinking they will continue unaffected and recognizable for the foreseeable future And beyond. I am grateful that as an artist part of me abhors anything resembling normal because that has signaled that it has been done/said/believed/thought before and therefor has some if not most of… -
The Art of Disappointment
11 Jun 2013 | 10:12 amhand painted silk robes, 1986 _____________________________ When I moved into my current apartment an ecstasy welled up in me because it was bright and clean and mine. Living here for a few weeks has weaned me away from that initial rush and left me hollow. I am living essentially in a parking lot..other apartments face mine a scant 30′ away on one side but mine borders the parking lot on two sides just 6′ away from my bedroom window.. I wheel 8 blocks over and through vast concrete swaths of other apartment complex real estate to finally arrive at a tiny patch of green for my dog… -
Creativity n’ Me
1 Jun 2013 | 4:36 pm“GIRL” 1999, ceramic,steel, 28″h __________________________ The act of publicizing my penchant for parking lots as I did in my last post generated enough private and concerned response that I thought I’d address it a tad further. The state of creativity has been my safe place in life. Always. That means that no matter what else was/is going on around me I trust my ability to drop into the ‘well’ (I call it). The qualities of a well are these: distance to the water, the journey to get there, darkness, mystery, fear, curiosity, nourishment, surrender to the… -
I Like To Watch
28 May 2013 | 8:30 amporcelain sculpture, 5″ x 2″ ___________________________ I had a secret place when I was a kid. It was a short bike ride from home and I’d go there for solace from an intolerable and toxic family experience. It saved me. It was a very non-human (except for me) experience; Nature with her greenness and protective forest-rimmed meadows populated by pops of color and a world of insects and birdsong. It was my safe place. Safe because no one knew. No one could find me until I wanted to be found. My body sank into the good dirt and my mind relaxed itself and dropped the…
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Need Project blog
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What Really Matters
16 Jun 2013 | 12:06 pmI’ve heard it before. If you have to evacuate your home what should you take? One year ago we had a devastating fire in our town. While I was concerned, and the direct impact on our family was fairly limited because the fire was “on the other side of town” I really didn’t think much about what I would do in a similar situation. One thing I did do was register for reverse 911 service on my cell phone. My wife and I talked about what we should take if we were ever evacuated, but soon after we had moved back into the rhythm of everyday life. Well, Tuesday of this… -
Faith is a Journey
14 May 2013 | 8:04 pmIn his book The Problem of Pain C.S. Lewis raises an issue that I have wrestled with for years. If the guiding principle of life is survival of the fittest, as the Darwinists claim, then disabilities are natural. They happen, and in a purely natural setting they are weeded out as part of the gradual evolution of a species. As cruel as it sounds, this combination of randomness and natural selection is a completely consistent explanation for disability, given an atheistic worldview. If we believe in an all-powerful God who holds the world in his hands, however, disabilities pose a real… -
Disappointment
14 Apr 2013 | 9:23 pmWhen I was a much younger man. I was fortunate enough to be in a job that was in demand. I had many opportunities to get in with companies that needed a new skill, which I happen to be blessed enough to have learned. My problem was not in having a job, but picking a company to work for. All of the companies would put on a good show when they were talking to me about working for them. Some seemed like good companies but I had no real system for figuring out if I should work for them or not. I would listen and make a decision mostly based on how nice they seemed to be. My way of… -
Worth and Value
14 Mar 2013 | 10:02 pmDo you remember your first paycheck? When I was fifteen I had worked various odd jobs for family and friends up to that point, but I got a job at a local grocery store as a bag boy. On my first payday I got a check in an envelope that looked so official. Boxes full of Information and taxes withheld, It felt like a big deal. I was so proud of myself. I went and opened a bank account to put my money in. It wasn’t like anything changed much, I still lived with my parents, I was still driving an old beat up car. That paycheck would not have taken me far, but it was a moment of pride. It… -
Cure for the Cynic
14 Feb 2013 | 8:20 pmOk, I will admit it. I am pretty cynical. As I have gotten older, I have found myself yelling at the evening news more and more. I read about disabilities and services for those with special needs and I come away more and more jaded. I don’t mean to bring anybody down but does anybody think our society’s attitude towards disability is getting better? And that doesn’t even get into the way those with disabilities interact with services that already exist. From what I can tell, services are costly, and since budgets are stretched everywhere people want to cut services. What I…
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Disabled Lifts
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Disabled Living Aids For Everyone
9 Jun 2013 | 7:06 amby John Dias Taking a shower or a bath is what the majority of people take for granted. Assistance in the bathroom is critical to independence and a sense of self-worth for someone with a disability. Shower chairs, safety-bars and movable faucets are helpful to many if they are installed correctly. Whether someone is born with a handicap or their body somehow becomes disabled later, they will need mobility aids to assist them. Everyday chores, grooming and personal hygiene and cooking duties become easier. Without simple assistance devices, people with a handicap may never be able to feel… -
Mobility Equipment: Boon for the Disabled
8 Jun 2013 | 9:24 amby My Indy Who can really understand the pain of disability? Mind it; it is not an absurd question. In the real sense of the word pain, only those with some kind of physical disability can feel the pain. It is neither possible nor good to make any comparison between different kinds of disability. Every kind of disability causes trouble, but physical disability that prohibits free movement on own without any external help is the most troublesome among all. Mobility equipment is the thing you might want. It is something that will help disable people regain their lost composure. There is a huge… -
Wheelchair Lifts
13 Apr 2013 | 9:48 amBy: Heinz Golz For those people who are immobilized for some reason or another , getting around is a demanding job. Many people don’t notice how treasured it is to freely roam, walk, run, climb stairs and have the ability to have access to varied parts of our home. Things could be a bit tougher in case you are in a wheelchair. Certainly you want to move around even in case you are restrained in a wheelchair, but your mobility is restricted, particularly if you happen to stay in a home with stairs or different high areas that are unreachable to wheelchairs. If you have to climb up and… -
Vertical Wheelchair Platform Lift
13 Apr 2013 | 8:11 amBy: Rick Lee Not everyone is fortunate enough to have the capacity of moving around freely. For those of us who are less fortunate and have to take the help of a wheelchair for moving around, the vertical wheelchair platform lift is the solution. Personal elevator The vertical wheelchair platform lift is more like your personal lift. The reason being, you will be the only one to use it. Other people also might but it will be installed for you and you are the one who will use it the most. Not only will it help you move around but will also be pocket friendly. The installation charge is minimal… -
Electric Liftchairs to Help You Stand Up!
6 Apr 2013 | 8:51 amBy: Charitha Batuwangala Most aids you can buy to increase mobility are very purpose-driven and serve only to help someone accomplish a task. Wheelchairs helping someone with a walking disability getting from A to B, shower chairs allowing someone to clean themselves safely- even electric scooters, though many people fall in love with their machine, only exist for shopping and other travel needs. One product that is the major exception in the world of rehabilitation products is the electric lift chair. A liftchair looks and feels like an ordinary recliner-chair, though with one important…
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Girl With The Cane
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Why I’m Inspired Today
18 Jun 2013 | 4:50 amI saw a video about Team Hoyt the other night, and I’m inspired. You may want to watch the video about Team Hoyt that I’ve linked to first. I guarantee that you’ll be inspired too. If you don’t have the time to watch the full 13 minutes about Team Hoyt right now, come back when you do have time. It’s worth it. http://www.upworthy.com/the-doctor-said-his-son-should-be-committed-he-chose-to-commit-to-his-son-instead In case you don’t have time to watch right now, here’s the story of Team Hoyt. Team Hoyt: An Endurance Athletics Team With a Twist Rick… -
Girl With The Cane 2nd Blogoversary
11 Jun 2013 | 9:03 pmIt’s hard to believe that I started this blog two years ago today. I originally started writing here as something to do when I was between jobs…I never dreamed that I’d learn so much in the process, and that it would bring me into contact with such amazing people. I never dreamed that I’d get to my first blogoversary, let alone my second! Thank you to those of you who have been kind enough to link to this blog, and of course to those of you who are kind enough just to take the time to read – that’s a real honour, considering that a lot of my posts… -
My Brain AVM Story: Forgetting May 29
9 Jun 2013 | 5:12 pmThe anniversary of my brain AVM surgery swept right past me this year. It’s not that I go out of my way to make a big deal out of it each year. But I generally remember, on May 29, “Today’s the day when I had my brain AVM Surgery, the day when everything changed.” My stroke happened a few days after my brain AVM surgery, but all that time is such a haze that I tend to think of Brain AVM Surgery Day as Stroke Day. But I didn’t think of it at all this year. What does Forgetting the Anniversary of my Brain AVM Surgery Mean? I was busy. I’m working in my… -
Thoughts on Sara Hendren and the Revamped ISA Icon
4 Jun 2013 | 5:52 amSo, there’s been an update to the International Sign for Access icon (the little dude in the wheelchair drawn in white against the blue background), and New York City is going to adopt it. Cambridge, Massachusetts resident Sara Hendren did the design. You can read a little more about her and the redesign process for the ISA icon here. It’s not just New York that’s jumped on board with this: Dr. Satendra Singh, coordinator of the Enabling Unit at University College of Medical Sciences & Guru Teg Bahadur Hospital in Delhi, India, has made a request to his government… -
Stephen Piotrkowski: Was it Discrimination or the Best Decision?
28 May 2013 | 9:57 pmBrace yourself, folks, this is a bit of a read. My apologies. I caught a discussion on Facebook among some friends the other day about a news story out of Northwestern University. FOX reported that a male student, Stephen Piotrkowski, was denied a position at Northwestern University’s Associate VP of Diversity and Inclusion because her is a white, heterosexual male . My friend started the discussion using this quote from the Daily Northwestern: “This university is not ready, in any capacity, for a heterosexual white male to be in charge in any way of diversity and…
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Handicapped Equipment
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Places To Hold Your Handicap Permit Card
6 Jun 2013 | 9:59 pmA handicap permit card is a type of permit that is given to people that have a disability that may make it difficult for them to get in or out of their vehicle and/or have issues walking to their intended destinations. The purpose of the card is to provide benefits to them that would make their lives [...] -
Commode Liners for Quick Cleanups
18 Mar 2013 | 8:00 pmUrinary and fecal incontinence can be disabling and embarrassing, but it is a fact of life for many home-bound patients. Portable bedside toilets provide ease and comfort for people who have trouble making it to the bathroom. Because toilet buckets can be messy, medical suppliers offer commode liners for quick cleanups. Disposable commode liners are [...] -
Improve Lighting In The Bathroom
5 Feb 2013 | 11:30 pmIf you’re like many homeowners, your bathroom is likely to be one of the most poorly lit rooms in your house. This doesn’t just interfere with everyday tasks like shaving, putting on makeup and other grooming activities. It can also be very dangerous. Poor lighting also means that you’re less able to see obstacles or [...] -
Tub Cut Outs
24 Jan 2013 | 8:23 pmTub cut outs offer a safe and easy way for anyone to enter and exit a bathtub/shower combination. Bathtub conversion can change a steel, porcelain, fiberglass or acrylic bathtub into a shower for a fraction of the cost of installing a new walk-in shower. The two main reasons a lower curb height is beneficial are safety for seniors [...] -
Using Night Lights In The Home
16 Jan 2013 | 9:45 pmA night light is a small device that provides gentle illumination in dark rooms and at night. They are much smaller than traditional lamps and can operate for days at a time if necessary. Most designs plug directly into an electrical socket and emanate light from the outlet. Others use batteries and hang on walls [...]
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Wheelchair Accessibility Blog and Disability News
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Paralysis Patients Walk Again with ‘Kickstart’
18 Jun 2013 | 9:35 amMoreWe have all seen the marvels of the exoskeleton, the robotic device that has been making news by helping those with spinal cord injuries walk again. But for Ron Cote, Eric McHuron and thousands of others with spinal cord injuries, the cost and size makes owning an exoskeleton an impossibility. Now, a smaller commercial version is gaining popularity, and with a price tag of just under $8,000, it makes walking again an attainable goal for many. Eric McHuron had a massive stroke that affected his mobility on the right side of his body. He was a geologist and an avid hiker before the stroke… -
Student Abandons Wheelchair to Walk Across Stage at College Graduation
14 Jun 2013 | 9:57 amMoreSam Bridgman is a 21-year-old man with Friedreich’s ataxia (FA), a rare degenerative neuromuscular disorder that has caused him to rely on a wheelchair. Bridgman has a motto: Impossible is nothing. This May, he lived his motto when he stood up from his wheelchair and walked across the stage to accept his college diploma at the University of Portland. Friedreich’s ataxia affects about one in 50,000 people in the United States, and the symptoms vary from childhood into adulthood, making it very difficult to diagnose. The disease typically begins by showing symptoms that include… -
Traumatized Toddler in Wheelchair Gets Apology from TSA
13 Jun 2013 | 10:35 amMoreThe U.S. Transportation Security Administration (TSA) has been under scrutiny many times in the past due to complications airline passengers with disabilities who use a wheelchair face while dealing with TSA screenings, but in this recent instance, they’ve provoked cries that no one would expect to hear, especially not from a 3-year-old girl: “I don’t want to go to Disney World.” What brought on such trauma to little Lucy Forck to denounce her plans to see Mickey Mouse? It was likely the confusion and panic brought on by Lucy’s mother, Annie Schulte, who would… -
Can Perceptions About Disability Be Changed by a New Accessible Icon?
12 Jun 2013 | 9:43 amMoreThe stick figure in a wheelchair is universally recognized as an indication of access for people with a disability, but many feel that it is due for a new, more vibrant look. Artist Sara Hendren, who lives in Cambridge, MA and has three children, one of whom has Down Syndrome, has taken the old image and given it a new spin: instead of a static image of a person who is part of a chair, her design shows mobility with the person, and thus the chair, in forward motion. The International Symbol of Access, as it is formally known, was originally commissioned by Rehabilitation International in… -
Children with Disabilities Can Access Tablets Thanks to a New Device
11 Jun 2013 | 9:24 amMoreParents around the globe are realizing the benefit that touch-screen devices such as iPads and tablets bring to their children. With thousands of educational apps at their fingertips, children are gaining more than just a source of entertainment from the devices. But for children with disabilities who are physically unable to use a touch-screen device, the opportunities have been limited, until now. Researchers at Georgia Tech have devised a way to make tablets useful to children who cannot manage the pinch and swipe gestures commonly required with most apps. The brainchild of Ayanna…
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Enabled Kids
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“We are not invisible” – Toronto’s 1st Annual Buddy Walk
12 Jun 2013 | 12:14 pm“Toronto, we are here. We are not invisible,” announces Nicole Flynn, 20, gold medalist of the Down Syndrome International Swimming Competition in 2012. With this vigorous, mighty statement, Flynn helped kick off the first Annual Buddy Walk in Toronto on May 11th at Woodbine/Ashbridges Bay Park. Held by the Down Syndrome Association of Toronto, the [...] -
Quote #14 – Travelling with your child with special needs
6 Jun 2013 | 8:00 amFrom the blog, Travelling with your child with special needs by Natan Gendelman -
Quote #13 – Achieving Everyday Milestones: Dressing and Undressing
30 May 2013 | 8:00 amFrom the blog Achieving Everyday Milestones: Dressing and Undressing by Natan Gendelman -
SPF – The Sun Protection Fallacy?
29 May 2013 | 6:59 amIt’s hard to believe that the month of May is quickly coming to a close. As we prepare to enter into June, the realities of being out and about in the sun raise a number of pressing issues. Most parents who are worried about protecting their children from the sun’s harmful rays commonly douse their [...] -
Quote #12 – Revisiting a child’s lifestyle
23 May 2013 | 8:00 amFrom the blog, Revisiting a child’s lifestyle by Natan Gendelman
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About.com Learning Disabilities
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Disability Advocacy in Special Education, Changing Roles of Pharmacists in Healthcare
9 Jun 2013 | 7:54 amChildren with special needs have unique needs when it comes to their education. With varying levels and different types of special needs, each child has completely different necessities when it comes to their education. Parents of children with disabilities need to know their rights and what they should be asking for in the school district where their children are enrolled. With all the different approaches and schools of thought on appropriate services, here are some things to keep in mind. Our nation's healthcare system is going through a huge change. We're all aware that our country is… -
Disability Round-Up - Summer Safety, Accessible Weddings, Lupus, and More
9 Jun 2013 | 7:46 amDr. Vincent Iannelli brings us important safety information on creating layers of protection, gun safety, road and traffic safety, and the importance of keeping kids (and pets too) out of hot cars this summer. Still not convinced that safety should be a top priority? read this disturbing list of recent child accidents and deaths and ways to prevent such tragedies. Wedding bells often ring in June! If you're planning a wedding for someone with a disability, or if you want to be a better host for your guests who may have disabilities, check out these tips. The Lupus Foundation of America's… -
Reactive Attachment Disorder and Teaching Your Teen about Car Accidents
1 Jun 2013 | 4:00 amIf you are the parent or adoptive parent of a child with a traumatic past of harsh abuse and neglect, your child may experience long-term emotional and possibly also behavioral problems. In the most severe cases, these children may develop reactive attachment disorder, a rare psychiatric disorder. It is exciting and scary when your teen begins learning to drive. As part of his driver's education, it is important to teach him about the common mistakes drivers make after having an accident. Mistakes that drivers often make after an accident can lead to legal as well as medical problems. The… -
Disability Round-Up - Focus on Physical Disabilities
1 Jun 2013 | 3:41 amBest Things to Do For Your Arthritis Doctors have strengths and weaknesses. How does your doctor's "bedside manner" match up with your personality? Should you change your doctor? Be inspired and meet Sky, a special needs cat with amputations who does amazing things! Heading to the slopes might be second nature for most teens and thanks to Texas Scottish Rite Hospital for Children and American Airlines, a group of teenage amputee patients are going to enjoy a ski trip to Colorado too. The all-expense-paid trip to Winter Park's National Sports Center for the Disabled "allows the patients the… -
Saving Money as a Life Skill and Coping with Being Bedridden
25 May 2013 | 3:00 pmSaving money is an important life skill that everyone should learn, but it is often overlooked in school. Teaching your young adult with a learning disability how to save money is a skill that will serve him well throughout his life. As the global financial crunch shows no sign of improvement, and living costs creep up each year, we all find ourselves looking for more ways to save money.teach your child strategies to save. Coping with a serious illness, injury, or disability that leaves you stuck in bed can be painful, physically draining, and psychologically difficult to accept. If you've…
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multiple sclerosis athlete
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MS Body, MS Mind
11 Jun 2013 | 10:32 pmI spend a lot of time with my head under water these days. It gives me time to think. The thoughts that have entered (or entertained) my mind as of late: what the heck is going on with my body and why do I like having my head under water so much? In many ways, […] -
MS Madness: Making the Mileage in Maui
1 Apr 2013 | 2:44 pmOne third of the way into my training program for an upcoming iron swim I thought it would be a good time to put my body to a Multiple Sclerosis (MS) stress test. I needed to make sure I was on the right track; that I was training my body to handle the special challenges […] -
MS Test: 933k to go
11 Feb 2013 | 11:02 pmMultiple Sclerosis (MS) has lived within my body for close to twenty years. Although I have spent a great deal of time researching my disease, I know little more than when I was first diagnosed … and I am not alone. We still don’t know the cause or cure, what triggers attacks, why some of […] -
MS Addiction: got dope?
26 Dec 2012 | 8:25 pmAmantadine, papaverine, meclizine, hydroxyzine, interferon, tadalafil, ciprofloxacin, desmopressin, venlafaxine, methenamine, vardenafil, nitrofurantoin, prazosin, oxybutynin, paroxetine, alprostadil, fluoxetine, trospium chloride, carbamazepine, diazepam, sildenafil, bupropion and sertraline: these are just some of over seventy-five drugs many of us have been prescribed for our Multiple Sclerosis. My drug of choice – dopamine – and I regularly self-medicate. I’m […] -
MS Challenge: from me to you!
22 Dec 2012 | 3:09 pmFor the longest time I have dreamt of swimming marathons. At a very young age, every summer my family and I would head up north to Val-David, Quebec, where we would swim in Golden Lake (Lac Doré). The lake is about 8 kilometers long and 5 kilometers wide. I would sit by the cottage window […]
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Friendship Circle -- Special Needs Blog
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14 Mental Health Tips for Children with Learning Disabilities
18 Jun 2013 | 5:15 amA Mental health illness affects up to 40% of people with learning disabilities, compared to 25% of people in the general population. Social issues, such as lack of friends or fewer opportunities in life, can often be a contributing factor. While, for others it may be living with a long-term medical condition such as epilepsy or diabetes. Identifying mental health problems in someone with special needs, can be challenging, but the key is noticing any changes in your child’s usual pattern of behavior. It’s important to know what is usual for your child, and to be aware of any significant… -
10 Things I Won’t & Will Do This Summer With My Child Who Has Special Needs
17 Jun 2013 | 4:19 amIt is with great irony that I refer to June, July and August as summer “vacation.” As I listen to friends and neighbors talk about their summer plans, I am reminded again of how different life can be in the world of special needs. So here’s a rundown of what my family will NOT be doing this summer. What We Will Not Be Doing 1. Sleep in. 2. Stay up late to watch scary fireworks. 3. Take a break from daily academics. 4. Allow the kids to swim without an adult in the water. 5. Jet off to…anywhere. 6. Stay clean. 7. Spend all day doing nothing. 8. Do the same thing every day. 9. -
We All Have Our Challenges: Words of Wisdom From A Young Lady With Cerebral Palsy
14 Jun 2013 | 4:05 amLiliya Bromberg is an incredible young woman who has lived with cerebral palsy for 22 years. For the past year, Liliya has been battling a rare form of liver cancer. Throughout this battle, Liliya has remained positive and upbeat. Over the years Liliya has experienced many challenges but she has found a way to overcome them all. Liliya has some amazing quotes and words of wisdom that she shares with anyone who visits her. She has so much advice that it has been turned into a book! We All Have Our Challenges We All Have Our Challenges is a collection of short bits of wisdom shared by an… -
9 Toys That Can Help Children who have Special Needs with Independent, Parallel and Cooperative Play
13 Jun 2013 | 3:48 amThere are many types of play children encounter with age, environment and mood. As children grow they evolve in their play abilities starting with independent play and moving through parallel play, cooperative play, and even competitive play. The sequence of play is an important role in child development and sets the foundation for learning how to interact and socialize with others into adulthood. Cooperative play or understanding group skills is the culmination of play stages during childhood. The Different Stages of Play Independent Play Independent play is important because it teaches the… -
Bullying & Children With Autism [Infographic]
12 Jun 2013 | 5:29 amBullying has become a major national concern, particularly as it affects children with disabilities. Recently a study was done by Dr. Paul Law of Kennedy Krieger’s Interactive Autism Network. The study documents the increase of bullying among children with autism. Below is an infographic showing the harm caused to autistic children who have been bullied and what parents can do to intervene.


