Disability

  • Most Topular Stories

  • Hope for Autism Treatment After Fragile X Study

    Disabled World
    27 Nov 2014 | 9:56 am
    People affected by a common inherited form of autism could be helped by a drug that is being tested as a treatment for cancer.
  • The Power of She: Don’t Put A Limit on What You Can Do

    Karen Putz » Deaf Mom
    Karenputz
    8 Nov 2014 | 7:25 am
    Five years ago, my husband Joe sent me a link that forever changed my life. It was a TODAY Show segment featuring Judy Myers, a 66-year-old barefoot water skier from California. Barefoot Water Skier is Landing on her Feet at 66 Judy inspired me to get back on the water and dive back into my passion for barefoot water skiing. The “Old Lady” taught me many lessons on and off the water, including the biggest one of all: don’t put a limit on what you can do. Age really truly is a number–and you can choose to grow bolder instead of older. Catch Judy’s story (and mine)…
  • How Human Muscles Work - Findings Show Insight into Muscle Disorders

    Disabled World
    28 Nov 2014 | 8:12 am
    Scientists led by Kristina Djinović-Carugo at the Max F. Perutz Laboratories (MFPL) of the University of Vienna and the Medical University of Vienna have elucidated the molecular structure and regulation of the essential muscle protein α-actinin. The new findings allow unprecedented insights into the protein's mode of action and its role in muscle disorders. The findings, made in collaboration with King's College London (KCL), may lead to improved treatments, and are published in the top-class journal Cell.
  • 'Off switch' for pain discovered: Activating the adenosine A3 receptor subtype is key to powerful pain relief

    Disability News -- ScienceDaily
    26 Nov 2014 | 10:26 am
    A way to block a pain pathway in animal models of chronic neuropathic pain has been discovered by researchers, suggesting a promising new approach to pain relief.
  • Breathing is so overrated

    Rollercoaster Parenting
    17 Nov 2014 | 3:10 am
    Some days, I just can't believe some of the things I hear.Listen to this one.A sweet friend of mine put in a request with NSW disability equipment Provider Enabe for a shower chair for her dear child. This requires a whole ream of paper, to be filled in by a qualified OT working for registered service provider.The reply came that, yes, the chair was approved. However, the requested harness was denied as the tilt on chair would suffice to keep the child seated just fine. So the mother rang and asked the senior advisor to read out loud what OT had written as the reason for needing a…
  • add this feed to my.Alltop

    Karen Putz » Deaf Mom

  • The Power of She: Don’t Put A Limit on What You Can Do

    Karenputz
    8 Nov 2014 | 7:25 am
    Five years ago, my husband Joe sent me a link that forever changed my life. It was a TODAY Show segment featuring Judy Myers, a 66-year-old barefoot water skier from California. Barefoot Water Skier is Landing on her Feet at 66 Judy inspired me to get back on the water and dive back into my passion for barefoot water skiing. The “Old Lady” taught me many lessons on and off the water, including the biggest one of all: don’t put a limit on what you can do. Age really truly is a number–and you can choose to grow bolder instead of older. Catch Judy’s story (and mine)…
  • Sunsets, Synchronicity, and Beaches

    Karenputz
    31 Oct 2014 | 5:29 am
    The graffiti threw us for a loop as we drove closer and closer to our hotel on Venice Beach. Joe and I expressed some apprehension about the area. I had picked the Venice Beach Suites out of the blue–the ratings were good, the price was reasonable, and the hotel was on a beach known for great sunsets.  For our 25th anniversary, we wanted to watch a sunset on the beach. From a quick look around, we discovered it was also known for a “high” lifestyle.  We debated whether to move to a hotel in Santa Monica. After some discussion, we decided to stay. “There must be a…
  • Empowered Women and Social Media

    Karenputz
    5 Oct 2014 | 4:22 am
    Back in 2000, my husband Joe suggested we buy a computer. I scoffed at the idea. Why should we pay a lot of money for a fancy typewriter? I was a mom with three kids–why would I have any use for a computer? Joe saw the value long before I could. As a deaf mom, I discovered I could connect with other moms via discussion forums and chats. In no time at all, I became a Pregnancy and Birth chat moderator for AOL in exchange for free internet service. In 2006, I dove into writing and social media. The World Wide Web was truly wide as I connected with people all over the world. Today, as a…
  • Write at Sea, A Cruise for First Time Book Authors

    Karenputz
    12 Sep 2014 | 6:59 pm
    I’m super excited about this next adventure–a cruise for first-time book authors! When I was deep into writing my first book, I slogged through it pretty much alone. I had no clue what writing tools to use, how to structure my writing, or even how to begin. So I began the only way I could think of. I just wrote. And wrote. And wrote some more. The book I ended up publishing looked nothing like the book I started with. Along the way, I met other writers. I picked up some tips and tricks. Six books later, I’m still writing and learning. The biggest and best…
  • Parenting During the College Years

    Karenputz
    18 Aug 2014 | 2:10 pm
    Letting go isn’t easy. Not even the second time around. Today is Move In day for my daughter, Lauren. The little girl is now a college student and today’s the day I have to let go and say goodbye. Three years ago, the hubby was with me when we said goodbye to David. The tears started flowing during our final hug and the tears didn’t stop until well into the long drive home. I’m lying here in bed with my daughter next to me and the tears are already flowing this morning. I’m thankful she has her older brother on campus to ease the transition for her. As for me,…
 
  • add this feed to my.Alltop

    Disabled World

  • How Human Muscles Work - Findings Show Insight into Muscle Disorders

    28 Nov 2014 | 8:12 am
    Scientists led by Kristina Djinović-Carugo at the Max F. Perutz Laboratories (MFPL) of the University of Vienna and the Medical University of Vienna have elucidated the molecular structure and regulation of the essential muscle protein α-actinin. The new findings allow unprecedented insights into the protein's mode of action and its role in muscle disorders. The findings, made in collaboration with King's College London (KCL), may lead to improved treatments, and are published in the top-class journal Cell.
  • Improving Canadian Veterans Access to Mental Health Care

    28 Nov 2014 | 6:11 am
    The Canadian Psychiatric Association (CPA) supports the Auditor-General's recommendations to improve Veteran mental health care. "While Veterans Affairs Canada has put in place important mental health supports for Veterans, the Report sets out targets for further action to improve veteran access to care," says Dr. Padraic Carr, President of the CPA.
  • Scytl Showcases Accessible Voting for Persons with Disabilities at UNESCO

    28 Nov 2014 | 6:09 am
    In close participation with UNESCO and its “From Exclusion to Empowerment: The Role of ICT for Persons with Disabilities” initiative, Scytl shares insight on how it is helping voters and citizens with disabilities overcome the challenges and barriers faced when looking to exercise their democratic right to vote and participate fully in their community.
  • BioAccel Launches Nationwide Collaboration to Bring Life-Altering Technology to Paralyzed Patients

    28 Nov 2014 | 5:13 am
    BioAccel, the nation’s premier non-profit medical technology incubator, has teamed with MakerStaker.com to provide patients who have paralyzing spinal cord injuries with technology that has helped nearly 20 study participants begin to regain their independence.
  • Hope for Autism Treatment After Fragile X Study

    27 Nov 2014 | 9:56 am
    People affected by a common inherited form of autism could be helped by a drug that is being tested as a treatment for cancer.
  • add this feed to my.Alltop

    Disability News -- ScienceDaily

  • 'Off switch' for pain discovered: Activating the adenosine A3 receptor subtype is key to powerful pain relief

    26 Nov 2014 | 10:26 am
    A way to block a pain pathway in animal models of chronic neuropathic pain has been discovered by researchers, suggesting a promising new approach to pain relief.
  • Minimally invasive disc surgery is a pain in the neck

    26 Nov 2014 | 8:10 am
    In comparison with open surgery, while minimally invasive surgery for cervical or lumbar discectomy may speed up recovery and reduce post-operative pain, it does not improve long-term function or reduce long-term extremity pain.
  • Diagnosing deafness early will help teenagers' reading development

    25 Nov 2014 | 5:57 pm
    Deaf teenagers have better reading skills if they were identified as deaf by the time they were nine months old, research has shown. The research team has been studying the development of a group of children who were identified with permanent childhood hearing impairment (PCHI) at a very early age. Follow up assessments when the children were aged eight showed those who were screened at birth had better language skills than those children who were not screened.
  • Muscle relaxant may be viable treatment for rare form of diabetes

    24 Nov 2014 | 12:26 pm
    A commonly prescribed muscle relaxant may be an effective treatment for a rare but devastating form of diabetes, researchers report. The drug, dantrolene, prevents the destruction of insulin-producing beta cells in animal models of Wolfram syndrome and in cells taken from patients who have the illness.
  • Impact of power prosthetic failures on amputees studied

    21 Nov 2014 | 7:25 am
    Powered lower limb prosthetics hold promise for improving the mobility of amputees, but errors in the technology may also cause some users to stumble or fall. New research examines what happens when these technologies fail, with the goal of developing more robust powered prostheses.
 
  • add this feed to my.Alltop

    Rollercoaster Parenting

  • Breathing is so overrated

    17 Nov 2014 | 3:10 am
    Some days, I just can't believe some of the things I hear.Listen to this one.A sweet friend of mine put in a request with NSW disability equipment Provider Enabe for a shower chair for her dear child. This requires a whole ream of paper, to be filled in by a qualified OT working for registered service provider.The reply came that, yes, the chair was approved. However, the requested harness was denied as the tilt on chair would suffice to keep the child seated just fine. So the mother rang and asked the senior advisor to read out loud what OT had written as the reason for needing a…
  • Justification

    10 Nov 2014 | 7:27 pm
    Paperwork to apply for funding under the incontinence scheme (for things such as nappies and catheters):Because "pissing your pants and sitting in them is undignified" is not a good enough reason!
  • Back again

    10 Nov 2014 | 7:27 pm
    Here we are, back in hospital again. Four bottles of this life-saving stuff for Beaver. A day of rest at home tomorrow. And another four bottles on Thursday.
  • Virgin Australia

    19 Oct 2014 | 7:52 pm
    How do you take a 50kg wheelchair user to the toilet on a 4 hour Virgin Australia flight. You drag or carry them is how!My father-in-law booked us (him and his wife plus the five of us) on a lovely and much needed break to Fiji. He still had some outstanding Virgin Australia tickets from the trip to Bali we missed out on when hubby broke his ankle last year. So Virgin Australia it was, Sydney to Nadi, and SoftiTel on Demerau, a resort style hotel close to the airport to minimize traveling, swimmers in the suitcase.After our recent experience traveling to Alaska and Vancouver Island with two…
  • Meds

    18 Oct 2014 | 2:55 pm
    The benefit of empty gelatine capsules - I can make one brain pill (for Bipolar) and one pain pill (for neuropathy).
  • add this feed to my.Alltop

    Rolling Around In My Head

  • OK, I Need Help and Advice

    27 Nov 2014 | 4:28 am
    Out of the blue, yesterday without any warning, someone popped into my life and thanked me for something that I did and for the effect that my action had had on their life. Out of the blue! Someone appeared and then disappeared again. It was, for me, nice. Discombobulating, because of all the emotions and memories suddenly brought to the fore, but nice.And now I'm on the horns of a dilemma. Maybe you all can help. Many years ago, when I was in school, a popular kid did something really nice to me. It was only that one time, it wasn't the start of any friendship or anything, it was just a…
  • Bullying Confronted

    26 Nov 2014 | 4:41 am
    From the start I've been a fan of the Hunger Games movies. I actually think that they have something to say, and the fact that China is wary of it because of it's themes and messages means that others agree. So, before seeing the third one, I wanted to buy the first two and watch them again, to have the story fresh in my mind. We went to a mall that had three different places to buy DVD's. The first, a chain, had really jacked up the prices, probably anticipating that others would do what I was doing. It would have cost nearly 80 dollars to buy both of them. Um. No.At our next stop we picked…
  • Can She Feel?

    25 Nov 2014 | 5:25 am
    Horror, yes. Disgust, yes. Surprise, no. Like many of you, when I heard that in a Los Angeles court an expert testified that a 9 year old girl with an intellectual disability would not experience trauma because, essentially, the less intelligent you are, the less trauma you will experience. Further he stated that, even though this girl was repeatedly assaulted her disability was a 'protective factor' regarding trauma.While many people have written, powerfully, about the implications of his testimony and the outrageous contention that people with disabilities don't experience real trauma and…
  • The Path

    24 Nov 2014 | 4:47 am
    A little girl is making art. It's a project that she is working on, along with a lot of other kids, in a school where I am going to be giving a lecture, in the auditorium, at the end of the school day. We arrived early, as Joe and I are in the habit of doing, and Joe stayed in the auditorium to set up while I went on a tour with the Vice Principle.We come upon this group of kids engaged in the making of art. I roll into the room in order to watch. I'm told, proudly, by the Vice Principle that it's an opportunity for me to see 'inclusion in action.' And, it's true. There are kids with both…
  • To The Red Headed Kid In Front of Me

    23 Nov 2014 | 4:36 am
    Dear Kid In Front of Me in the Lineup,Before I start, let me just assure you that I think you are an amazing kid. I know you aren't used to getting letters from strangers but this is the only way I can think of to express my admiration of the person you already are and the person you are still yet to be.When I pulled into the lunchtime line up and saw that I was fifth or sixth in line behind a bunch of young teens, yes including you, I immediately tensed up. You see these are really unsafe situations for me. I'm fat, I'm in a wheelchair, I'm a pretty big target for really small hearts. But I…
 
  • add this feed to my.Alltop

    My Private Casbah

  • My Dating Patterns

    13 Nov 2014 | 6:50 pm
    Ebony magazine's website has an uplifting and engaging article on it called "Black Girls Only". What the author says in the last paragraph about desire comes as a sort of revelation to me."...I'm well aware that desire is different from love. Desire is definitely constructed around social influences and signifiers of what is beautiful and worthy of love. From body type to complexion we are inundated with messages about who should be wanted and who shouldn't. My choice to love black women only is revolutionary. It's a reflection of my radical politics.  It's my straight no chaser lust,…
  • Lord Make Haste to Help Me!

    3 Nov 2014 | 8:57 pm
    I have a prayer request. On Wednesday, I have to find a way to get all the way to Baton Rouge (which is an hour and a half away from here) even though my roommate is working and can't take me unless I can convince the doctor's office that's contracted with Social Security to let me be seen earlier in the day. Please pray that something works out. I don't want to borrow my roommate's car. I really don't like using anyone else's things. She has said that if it comes down to it, she'll let me, but I don't want to do that. I kind of have a policy of not using something that belongs to someone…
  • Gaze Upon the New Boss, Same as the Old Boss / Why I ain't Impressed by Young White Liberals

    24 Sep 2014 | 11:22 pm
    Another white liberal/progressive removed themselves from my Facebook friends list today. Apparently, I'm too upsetting to her gang of racist friends and the more assimilation minded POC buddies. At first this bothered me. This was someone I'd been giving the benefit of the doubt for over a year. She always seemed just one step away from strictly claiming to care about POC and PWD to understanding that it was time to act on those supposed feelings of regard for us. It never happened. In the end, whiteness is just too comfortable and comforting for most people to willingly reject it.I should…
  • The Switch to Online Courses Presents Challenges for Students with Disabilities

    16 Sep 2014 | 7:56 pm
    Slate has an article about how universities are switching from using original content generated by professors to online courses produced by the major textbook companies. It's a very disturbing trend.My child is taking one of these Pearson math courses in college right now. Ze also took an online math course in high school. The high school version was great for a student like hir who could zip through all of the assignments at hir own pace by utilizing resources like Youtube for learning concepts that weren't explained well by the course material. Ze says the math course ze's in now is going…
  • Goats and Disabilities

    8 Sep 2014 | 2:32 pm
    I spent the morning mucking out the enclosures for 17 goats. It was really, really physically taxing. After the first pen, I regreted taking this job. When you're sweeping and shoveling goat poop, your clothes get covered in a fine dust consisting of dirt, hay, and dried poop. It was impossible to keep cool. I quickly ran out of water in my thermos and I was too far from the house to go back for more.Still, I kept at it. The second and third pens were easier and I think it was because I developed a strategy for cleaning them. The fourth and last pen was THE WORST. I couldn't even get to the…
  • add this feed to my.Alltop

    Sunny Dreamer -- We write to taste life twice...

  • The Princess Who Loved Her Father Like Salt

    19 Nov 2014 | 12:00 am
    Here's something I did not know: the Cinderella tale is more prevalent, or popular, than I thought. Two days ago I found a blog that has compiled--are you ready for this?--365 different versions of the faerie tale! That's more than I ever imagined was out there! And that's where I found the Persian Cinderella story. Growing up, I knew there was a Native American version of the story, 'cause I read it as a kid. And a Chinese version, 'cause I read it a long time ago as well. Now, Disney is doing a live action remake of Cinderella; I saw a trailer for it today on Facebook. I'm just amazed at…
  • Rainbow Crow

    10 Feb 2012 | 12:00 am
    I wish I had more ummph today, but after what this week has brought me, I'm lucky I'm posting today at all. I'm really tired, but I'm trying to stick to my goal of blogging everyday this week, from Sunday the 5th to Sunday the 12th. I'm afraid all I'm up for posting today is a Native American myth I found over at S.E. Schlosser's site. I found it in her "Winter Tales" section. Rainbow Crow (Lenni Lenape Tribe) retold by S. E. Schlosser It was so cold. Snow fell constantly, and ice formed over all the waters. The animals had never seen snow before. At first, it was a novelty, something to play…
  • add this feed to my.Alltop

    Blob

  • Listener’s Poker

    dnw
    12 Nov 2014 | 11:37 pm
    Over on his blog, my mate Kent has started a game of listeners poker. He explains it like this: [It's like]  Liar’s Poker, but with sound.  Somebody pick something good, and others try to top it.  We’re talking playing, and musicianship.  Not just some studio-created and network-marketed nonsense.  Music.  Reeeeeel music. Well, I’m game. And seeing as he started with an instrumental I’ll continue that theme, and raise him a Bruce Cockburn… Got some music you think is good? Prove it!
  • Firechat Enables the Crowd to Become the Internet –Bypassing Central Powers | Web Strategy by Jeremiah Owyang | Digital Business

    dnw
    3 Oct 2014 | 7:51 pm
    Keep an eye on this. Mesh networking should be more of a player as proliferation of mobile devices increases. Especially in high density populations. Firechat Enables the Crowd to Become the Internet –Bypassing Central Powers | Web Strategy by Jeremiah Owyang | Digital Business.
  • Enterprise: Social Media Staff Guidelines list

    dnw
    8 Sep 2014 | 3:59 am
    This list also includes policies called; Staff blogging policies, enterprise social network guidelines, Employee Blogging Policies, Staff engagement in online communities, and so on. via Enterprise: List of 40 Social Media Staff Guidelines » Laurel Papworth @SilkCharm.
  • The unconsciously built connected consciousness | Cluetrain at Fifteen

    dnw
    29 Aug 2014 | 12:46 pm
    [The Net is] the connected consciousness of the market itself. It makes markets smart by giving customers unprecedented powers, the most fundamental of which is each other via Cluetrain at Fifteen | Linux Journal. What I have always loved about Doc is how human he is. For me this quote encompasses everything the article has to say… It also points to what I consider as to the how the Net itself came into being… as an unconsciously built connectivity tool… because as humans we create and form what we crave.
  • The Parent’s Guide to a Minecraft Server for your kids

    dnw
    27 Jul 2013 | 1:28 am
    A friend of mine posted on facebook wondering if anyone knew about running a Minecraft server, predominantly for her son. Me and my son have been through the experience and we’ve come up against a few hurdles we had to overcome. I thought it might be useful to share what we’ve done. So here it is, the Parent’s Guide to setting up a Minecraft server… a list version. A Computer – I had an old computer laying around so put that on the LAN with idea of running it headless (no monitor). Mine’s a Mac but it doesn’t make any difference, just use what you…
 
  • add this feed to my.Alltop

    Fred's Head from APH, a Blindness Blog

  • 2015 Hall of Fame for the Blindness Field Nominations are Now Being Accepted

    Marissa Slaughter Stalvey
    18 Nov 2014 | 7:51 am
    Who should be the next inductees in to the Hall of Fame for the Blindness Field?  "The Hall of Fame for Leaders and Legends of the Blindness Field is dedicated to preserving, honoring, and promoting the tradition of excellence manifested by the specific individuals inducted into the Hall of Fame and through the history of outstanding services provided to people who are blind or visually impaired." The nomination process is easy and can be done electronically. Submissions are due by March 27, 2015. What are the criteria? Persons who have made significant contributions to improve the lives…
  • Parenting with a Visual Impairment

    Marissa Slaughter Stalvey
    27 Oct 2014 | 8:07 am
    Parenting with a Visual Impairment: Advice for Raising Babies and Young Children, a new book and CD set from APH, shares helpful tips, techniques, attitudes, and preparatory experiences from successful parents who are blind and visually impaired. The parents in Parenting with a Visual Impairment: Advice for Raising Babies and Young Children each completed an extensive written questionnaire and a 90-minute phone interview about how they accomplished parenting tasks using non-visual techniques. Book Summarizes Parents' Responses: Decided to have children Prepared to become parents Acquired…
  • In Memoriam: Fred L. Gissoni

    Marissa Slaughter Stalvey
    2 Oct 2014 | 2:33 pm
    We are mourning the loss of the incomparable Fred L. Gissoni, who passed away Sunday, September 21, 2014 at the age of 84. Fred contributed 60 years of service to people who are blind and visually impaired. Fred was known across the United States and around the world for his brilliant intellect, inventiveness, and impish sense of humor. Before coming to APH in 1988, he retired from what was then called the Kentucky Department for the Blind. Fred served for 23 years at APH, retiring in 2011 from our Customer Relations Department, but his legacy will live on for years to come. He helped create…
  • Developing Accessible Apps for People who are Deafblind

    Marissa Slaughter Stalvey
    10 Sep 2014 | 7:52 am
    By Dr. Arun Mehta, Bapsi Bapsi is a small NGO in India that seeks to help those with multiple disabilities via free and open source technologies, with a current focus on the needs of the deaf-blind. Earlier, they needed an iPhone with a braille display to communicate. With free apps from our Vibration series, they can use Android smartphones costing as little as $50 to be able to send and receive information independently. To someone completely lacking vision and hearing, the phone sends text by vibrating in Morse code. Taking advantage of a grant from the Information SocietyInnovation Fund,…
  • APH News: September 2014

    Marissa Slaughter Stalvey
    8 Sep 2014 | 8:05 am
    The September 2014 APH News is now online! This month’s headlines: “Full Steam Ahead!”—146th Annual Meeting Registration Still Open National Prison Braille Forum: Countdown to Launch Time! Complete the 2014 APH Customer Satisfaction Survey Field Test Opportunity: Nemeth Tutorial Oldies but Goodies: The "Established" APH Product Series Treasures from the APH Libraries Social Media Spotlight APH Travel Calendar New Products from APH The Braille Book Corner and much, much more…
  • add this feed to my.Alltop

    lifekludger

  • In search of the Ubiquitous Mouthstick

    dnw
    17 Nov 2014 | 6:17 pm
    Mick (email on request) sent me this very pertinent email the other day about the un-ubiquitous nature of mouthsticks. Lads is it just me or do we all use any given mouth-stick for a broad variety of tasks? I ask because I find that many of the solutions offered for a specific issue -in this case touch-barrier-only focus on that one use. And do not allow for the fact that mouthsticks are used as fingers. In fact I find most commercially available mouthsticks really flimsy and restrictive. For instance, I want to be able to use the same mouthstick to turn pages, push switches, use phone or…
  • Faraday Stylus’ new capacities program

    dnw
    7 Nov 2014 | 6:39 pm
    Just came across the iFaraday stylus via a blog post on ATMac. All their stylus’ look good and I’m impressed with their “new capacities” program which states Our goal is to enable anyone who wants to use a capacitive touch screen device.  We have three working designs that enable folks to use a capacitive touch screen. If you don’t find something that fits your needs here, contact us to see if we can create something that works better for you. The mouthstick variety looks fantastic and especially the fact you can order specific lengths but with the bonus of…
  • App for deaf people to ‘hear’ group conversations

    dnw
    3 Nov 2014 | 6:28 pm
    Smart, very smart use of technology to enhance lives. Researchers have developed the first mobile app to make group conversations possible between deaf people and their hearing peers. The Transcense app “listens” and interprets conversations, providing real-time captioning on mobile devices.   Indiegogo campaign : https://www.indiegogo.com/projects/transcense-group-conversations-made-accessible Transcence website : http://www.transcense.com/ via [New app lets deaf people ‘hear’ group conversations — RT News.] Related posts: Feel the music Live Subtitling for the Deaf and Hard…
  • Communicate Using Only Your Breath

    dnw
    17 Sep 2014 | 11:45 am
    Huff post report on invention by 16yo Arsh Shah Dilbagi who has found a way to convert human breath into speech via – 16-Year-Old Invents A New Way To Communicate — Using Only Your Breath. Related posts: BreathBird : Breath activated scanning input comes to iPad Blow scrolling
  • Reader Writes – carbon fiber mouth stick fabrication needed

    dnw
    1 Sep 2014 | 1:03 am
    I received the following comment on my post Reader Writes: Another alternative for a touch mouthstick from Aaron who is looking for help fabricating a mouthstick solution. The aim of Lifekludger is to try and bring together people who make things (Makers) with people who need things (Livers). I post it here in hope someone might be able to assist him. Hello, I am a quadriplegic, and I had a very customizable mouth stick made for myself almost twenty years ago. The mouth stick has many easy exchangeable different types of attachments that are available to use. The attachment’s range from…
  • add this feed to my.Alltop

    Rolling Rains Report

  • Scandic's accessibility training wins two awards for best interactive training

    Scott Rains
    12 Nov 2014 | 9:13 am
    Scandic's accessibility training has won first prize for best interactive training at the Swedish Learning Awards 2014 and also took home silver in the British E-learning Awards. Scandic is a leading hotel operator in the Nordic countries today. Just over 10 years ago Scandic started its journey towards making its hotels more accessible for people with disabilities. On top of this a wide-ranging interactive training programme has been developed for all the hotel chain's employees with the aim of fostering an understanding of different types of accessibility challenges and the importance…
  • Post-Summit Report: Destinations for All 2014

    Scott Rains
    12 Nov 2014 | 8:01 am
    The first World Summit Destinations for All took place at the Palais des Congrès in Montreal from October 19-22, 2014. More than 350 delegates from around the globe came together with one goal: to further develop and implement international standards to build an accessible world for everyone. To view all of the Summit's photos, click on the following link: http://bit.ly/1vSCBlXThese photos are royalty-free and can be shared.AN OVERVIEW OF THE SUMMIT366 participants from 31 countries;148 sessions and 6 panels underlying 3 main themes: tourism, culture and…
  • US Veterans with Disabilities Toolkit

    Scott Rains
    11 Nov 2014 | 9:20 am
    WASHINGTON, D.C., November 11, 2014--Today the Equal Rights Center (ERC)--a national non-profit civil rights organization--released a new toolkit to help veterans with disabilities advocate for accessible housing. "Every year, hundreds of thousands of veterans return home to new challenges and barriers due to physical and mental disabilities resulting from their service to and for our country," said Melvina Ford, executive director of the ERC. "Under the federal Fair Housing Act, these veterans are entitled to accessible housing and beyond that our gratitude and…
  • ThisAbility for Peace

    Scott Rains
    2 Nov 2014 | 1:08 pm
    Philosophy behind "THISability for Peace"It's been a long time that I've been fostering the idea of launching an international group on Facebook to promote global peace through disability concept. However, I had my own reasons to procrastinate it, mostly because I am pretty busy with my Iranian group of Disability Rights Advocates, as well as my personal and academic activities. While I avoided getting involved in a new time-consuming project, I was finally overcome by my constant temptation. Therefore, after I finished making the logo for THISability for Peace, I did not hesitate to upload…
  • IASG: Inter-Agency Support Group for the CRPD meets to chart way forward

    Scott Rains
    1 Nov 2014 | 11:59 am
    On 14-15 October, the UN Inter-Agency Support Group (IASG) for the Convention on the Rights of Persons with Disabilities met via video-conference. Over 15 agencies and others participated in the meeting and open sessions, including representatives of the International Disability Alliance (IDA) and the International Disability and Development Consortium (IDDC). At the meeting, the IASG decided to further strengthen its collaboration in the promotion of a disability-inclusive post-2015 agenda and in relation to inclusive emergency and humanitarian responses and disaster risk reduction for…
 
  • add this feed to my.Alltop

    DISABILITY NEWS - Google News

  • Congress finds cause to agree on: Disability assistance - USA TODAY

    Google Inc.
    26 Nov 2014 | 6:51 am
    USA TODAYCongress finds cause to agree on: Disability assistanceUSA TODAYWASHINGTON — Congress is set to approve the first major piece of legislation affecting Americans with disabilities in nearly 25 years with sweeping, bipartisan support. "It's a good opportunity to show how we can work together," said Rep. Ander and more »
  • The untold story of Indigenous Australians and disability: five questions to ... - The Guardian

    Google Inc.
    27 Nov 2014 | 3:42 pm
    The GuardianThe untold story of Indigenous Australians and disability: five questions to The GuardianMy road to Aboriginal and Torres Strait Islander disability policy and research has certainly not been a straight line. I spent my early career in health, education and operations. I have always been at the fringes of research though and describe and more »
  • Being a traffic cop at the intersection of disability and Social Security benefits - InvestmentNews (blog)

    Google Inc.
    27 Nov 2014 | 6:22 pm
    Being a traffic cop at the intersection of disability and Social Security benefitsInvestmentNews (blog)Based on the contents of my mailbag, it seems there is an increased appetite for information about Social Security disability benefits. Specifically, advisers want to know what happens when clients who are receiving Social Security disability benefits What you need to know before reading new Social Security statementsMinuteman News CenterImmigrants Social Security eligible in Obama planDaily AstorianConservative Media Cite Widely Discredited Research To Falsely Claim Media Matters for…
  • Disability advocates seek reform for inmates' mental health care, solitary - Omaha World-Herald

    Google Inc.
    27 Nov 2014 | 10:53 pm
    Disability advocates seek reform for inmates' mental health care, solitaryOmaha World-HeraldThe Disability Rights report cited one study that gave a name to the “irrational anger and rage, loss of impulse control, paranoia, and perceptual distortions/illusions/hallucinations” associated with stays in solitary: “SHU Syndrome” or “Special and more »
  • Fines from bank Libor rigging may be used to close hospital disability units - The Guardian

    Google Inc.
    26 Nov 2014 | 2:36 am
    The GuardianFines from bank Libor rigging may be used to close hospital disability unitsThe GuardianGary Bourlet, who has a learning disability and is co-development lead of disability group People First England, said: “We need someone to take charge of making change happen. And that person should be working alongside someone with a learning ...Bubb report into care of people with learning disabilities: views from the sectorThe GuardianCare for people with learning disabilities 'failing', report saysBBC News'Immediate action needed to improve learning disability…
  • add this feed to my.Alltop

    Low Visionary

  • Colour contrast counts! A cautionary tale

    Robyn
    18 Nov 2014 | 6:56 pm
    Information accessibility challenges can pop up in unexpected places. Recently I was talking to someone involved with an amateur dramatic society. Billboards were designed for the latest production. The billboards, complete with fancy font for branding, were displayed in and around the small country town where my friend lives. On the computer screen they looked great. But he discovered to his annoyance that when driving past them at the open road speed they were unreadable. Some retrofitting was needed. A steady handed volunteer was recruited to outline the lettering in black to increase…
  • Re-thinking disability advisory groups for community engagement

    Robyn
    1 Oct 2014 | 2:38 pm
    For some years now many disabled people have been involved in advisory groups. These are usually established to enable organisations such as local government, central government, health organisations or other national and local bodies to meet their obligations towards disabled people. These advisory groups are not limited to the disability community  - but my reflections on their workings are. As some advisory groups exist now there are problems resulting from a lack of commitment, or a tokenistic approach to “doing the right thing” rather than a real desire to include disabled…
  • Political party web sites fall short

    Robyn
    7 Aug 2014 | 4:44 pm
    Disabled people often rely on the Internet for information because many other information sources are inaccessible.  They experience accessibility barriers when finding and using information on the web if sites have not been designed and built with accessibility in mind. Why we audited  political party web sites “Can we all come to the party” is a report we produced at AccEase to see how easily people with disability can engage with party political websites before the New Zealand election on September 20th. The report says “Voting and participation in the electoral process is a…
  • A voice for everyone

    Robyn
    16 Jul 2014 | 1:13 am
    This is an edited version of a keynote speech delivered at the disability conference, How do we all raise the volume of the unheard voice?,  Auckland July 2 2014. Tena koutou tena koutou katoa  Minister Turia, Health and Disability Commissioners. Ladies and gentlemen. Greetings to you all. Thank you to the HDC and others who have organised this day. Thank you for asking me to speak. This is one of the few opportunities people in the diverse disability community have to meet and exchange ideas. It is valuable and important. Let’s make the most of it. Raising the volume of the unheard voice…
  • Levelling the playing field for disabled women

    Robyn
    9 Jun 2014 | 4:16 pm
    This is an edited and updated version of a speech given on a panel at Rehabilitation International Seminar, Embracing the Opportunities April 16 2014, held in Wellington. Disabled women in New Zealand have made progress but there is still a long way to go. I will not outline yet again in detail the many inequalities faced by disabled women. For many disabled women the playing field is some distance away, never mind whether they can access it, or whether it is level or not. In 2014 disabled women in New Zealand are still relatively invisible  and our interests, rights and perspectives are…
  • add this feed to my.Alltop

    ATMac

  • Weekend Roundup for 23 November 2014

    Ricky Buchanan
    23 Nov 2014 | 3:04 am
    Here are some of the best articles, links, and new products that I have spotted online in the past week or so which have some relevance to Apple products and disabled or chronically ill users … OS X Links Updated Bookshare Web Reader Now Lets You Read using Safari for Mac! iOS Links Ever wanted a way to set your iPhone/iPad volume so the user can’t change it? Volume Sanity may help. Miss T9 texting on your iPhone? There’s an app for that Smart Apps For Special Needs: Top apps to teach/support following directions! Put down the turkey … 10 best social story apps + tips to help…
  • Screen Protectors for Your iPhone And iPad

    Ricky Buchanan
    21 Nov 2014 | 1:07 am
    Screen protectors – films or sheets that fit over the screen on your phone – used to be a necessity for iPhone users. Are they as necessary for new phones? Here are the accessibility advantages and disadvantages of screen protectors, and a run-down on what’s available. Advantages of Screen Protectors Glare from screens can be a problem if you use your phone anywhere there’s direct sun or bright light and this can be a much bigger issue for those with some types of low vision and eye problems, as well as neurological issues such as dyslexia. Anti-glare screen protectors…
  • iOS 8 Keyboard Review: Keedogo and Keedogo Plus

    Ricky Buchanan
    18 Nov 2014 | 12:55 am
    Third-party custom keyboards were one of the accessibility enhancements that was most anticipated in iOS 8. Keedogo and Keedogo Plus from AssistiveWare are excellent for beginning typers and those who need a simple and colourful interface. These reviews are generally just a single keyboard at a time but Keedogo and Keedogo Plus are significantly similar so I am reviewing them together. Thanks to AssistiveWare’s David Niemeijer for answering my many questions! Description from AssistiveWare’s own website: Keedogo is designed for children and young students who just started to read,…
  • Weekend Roundup for 16 November 2014

    Ricky Buchanan
    16 Nov 2014 | 3:28 pm
    Here are some of the best articles, links, and new products that I have spotted online in the past week or so which have some relevance to Apple products and disabled or chronically ill users … OS X Links Audio: Making calls on your Mac via iPhone using iOS 8.1 and Yosemite with VoiceOver OS X Yosemite How-to: Enable Dark Mode Still a bunch of articles about Yosemite – the new version of Mac OS X. Don’t forget to take a look at our Mac OS X 10.10 Yosemite Accessibility Roundup. OS X Yosemite: Let’s Make Some Phone Calls! Audio: Exploring The Improved Accessibility Of iBooks On…
  • Keyboard Skins for Macbooks and Apple Keyboards

    Ricky Buchanan
    12 Nov 2014 | 3:51 am
    Are you familiar with keyboard skins? These cover your keyboard with a thin skin made from flexible silicone to help protect the keyboard as you use it. A protector won’t make your keyboard completely waterproof but they’ll help protect it from spilled drinks, drool, crumbs, pet hair, etc. Keyboard skins are sometimes translucent but may be coloured or even printed with attractive designs to personalise your keyboard similarly to how iPhone cases personalise your device. Skins are also usually overprinted with keyboard layouts, including commonly used layouts like QWERTY and less…
 
  • add this feed to my.Alltop

    Disability Scoop

  • States Ranked On Court Accessibility

    Michelle Diament
    25 Nov 2014 | 10:26 am
    A new ranking finds that access to the courts for people with disabilities varies significantly from one state to the next.
  • Teens Get Community Service In Ice Bucket Case

    Shaun Heasley
    25 Nov 2014 | 10:24 am
    Three teens who dumped urine, tobacco and spit on a 15-year-old with autism who thought he was participating in the "ice bucket challenge" have been ordered to do community service.
  • Disney Facing More ADA Suits

    Paul Brinkmann, Orlando Sentinel/TNS
    25 Nov 2014 | 10:10 am
    A battle over disability access at Disney theme parks has been renewed, with more than two dozen separate claims filed against the entertainment company.
  • Senate Unlikely To Reconsider UN Disability Treaty

    James Lynch, Waterloo-Cedar Falls Courier/TNS
    23 Nov 2014 | 9:01 pm
    There is not enough support in the U.S. Senate to warrant another vote on ratification of an international disability rights treaty, according to one of the measure's chief backers.
  • Future Uncertain For National Children’s Study

    Lisa Gillespie, Kaiser Health News
    21 Nov 2014 | 9:34 am
    An effort to track the health of 100,000 kids from birth to adulthood may stop before its official start in a potential setback for those looking for answers on autism and other disorders.
  • add this feed to my.Alltop

    Clear Helper

  • Online Security & Privacy for People with Cognitive Disabilities, Part 1

    John Rochford
    3 Nov 2014 | 8:34 am
    I am trying to evaluate the barriers of online security and privacy to people with cognitive disabilities. This work will help inform the effort of the W3C’s Cognitive and Learning Disabilities Accessibility Task Force to recommend standards on how to make online security and privacy more accessible. Problem I am struggling with how to go about this evaluation. It is a daunting task to come up with common barriers and solution recommendations across: the many end-user security and privacy techniques, e.g.: passwords; two-factor authentication; biometrics; and encryption the variety of…
  • CAPTCHA, Cognitive Disabilities, v1 (W3C Task Force)

    John Rochford
    2 Sep 2014 | 5:59 am
    As a member of the W3C‘s Cognitive and Learning Disabilities Accessibility Task Force, I agreed to review web-security technologies. I chose to begin with CAPTCHA. My first draft is below. The format I am using is the one I intend to use for future reviews. All the text is my own. I welcome your feedback, additions, and/or revisions. Definition CAPTCHA is typically a website widget that prevents automated programs from submitting a web form intended for humans by requiring humans to pass a test. Such tests present distorted text visually and/or aurally; and require the form-submitter to…
  • Autism Gap Analysis (W3C Task Force)

    John Rochford
    25 Aug 2014 | 6:10 am
    Neil Milliken and I have written an autism gap analysis as part of the effort to create gap analyses by the W3C‘s Cognitive and Learning Disabilities Accessibility Task Force. Our intent is to identify the gap between where the state of accessibility for people with autism is now when using the web, and where we want it to be. The following is information about the autism gap analysis. We included some personas with use cases that address key challenges. The personas and use cases are based upon aggregated results of interviews of people with autism-spectrum disorder (ASD),…
  • Gap Analyses for Cognitive Web Accessibility (W3C Task Force)

    John Rochford
    19 Aug 2014 | 6:14 am
    The members of the W3C‘s Cognitive and Learning Disabilities Accessibility Task Force have been working since January to develop a set of gap analyses. A gap analysis, as we have defined it, identifies the gap between where the state of accessibility for people with cognitive disabilities is now when using the web, and where we want it to be. The gap analyses are based upon common cognitive disabilities. The following list of the gap analyses includes their primary authors (as of July, 2014). ADD / ADHD Authors: Susann Keohane, Mary Jo Mueller Aging and Dementia Authors: Katie…
  • Proposed Infrastructure For Automatic-Accessibility Personalization

    John Rochford
    29 Apr 2014 | 6:55 am
    The WC3‘s Cognitive and Learning Disabilities Accessibility Task Force received a presentation about a project called the “Global Public Inclusive Infrastructure” (GPII), from Gregg Vanderheiden, on March 31, 2014. Quoted below is a project description. “The purpose of the Global Public Inclusive Infrastructure (GPII) is to ensure that everyone who faces accessibility barriers due to disability, literacy, digital literacy, or aging, regardless of economic resources, can access and use the Internet and all its information, communities, and services for…
  • add this feed to my.Alltop

    HEALING THROUGH MULTIPLE SCLEROSIS

  • Thanksgiving

    Cathy
    27 Nov 2014 | 10:26 am
    ceramic seeds, 1″ each ___________________ THANKSGIVING POEM I want to say something About not getting What you want Because if all those prayers Had been answered I’d surely not be me And that would be a shame. The warm press Of my dog on my thigh Might have slipped My attention As I went surfing the net; Mindlessly window shopping For fur hats. I might have missed The precious and strong Grip of my left hand If my right one Weren’t so weakened By the take-away Illness brings. What if I actually had All the independence I have prayed for And altogether missed My heart stretching…
  • Be Still

    Cathy
    24 Nov 2014 | 5:56 pm
    ceramic shells ____________ I am at a loss to add anything to this video but I wanted so much to share it with you all as all the chaos and craziness begins for the holidays. I invite you to breathe and settle to watch the whole thing. You will be different after experiencing this. I am.
  • Where I Come From

    Cathy
    23 Nov 2014 | 11:15 am
    Growing up I spent most weekends with my grandparents who lived on a lake/pond. It was pretty still water with just the right amount of brush and uncut trees bordering the edges. Mornings would find me on the trail to my favorite access where I felt the privacy I needed to just BE. In this lake were giant orange carp. (skip to 1.14 in video) I fantasized they were unwanted goldfish flushed down the toilet and now getting their revenge by growing into huge monsters. I loved them. When we are kids and unfortunately this penchant seems never to leave us; that of: “I LOVE THAT! I WANT THAT!
  • I Have To Laugh

    Cathy
    17 Nov 2014 | 8:23 am
    detail of installation, ceramic _______________________ I have to laugh at the thought of you all reading yesterday’s post…. I mean, REALLY! What a picture I leave you with: girl in wheelchair beating the bejezus(sp?) out of a pillow yelling profanities into the morning air. These are some of the ways I entertain myself it seems. Latent anger needs a voice. A bad-girl one preferably. Having done what it has taken to get authentic I now like to watch myself being so. Truly- who would have thought those noises were in this girl? Then this morning I am different. Light. Engaged with…
  • What Makes Me Come Alive?

    Cathy
    16 Nov 2014 | 4:09 pm
    “WOMAN BECOMING” 70×42, m/m ___________________________ Winter came. I felt isolated, dogless, flat over the weekend. My friends I spoke with felt equally adrift; “What is my purpose?” “I just wanna watch TV.” “I have a stomach ache.” “I’m just over here cleaning out drawers and I don’t even know why.” Pulling in when one is already IN is dicey territory. Here comes winter and my body and spirit balk at the tightening up, bundling up, showing up for the naked trees and infinite colors of grey. Here’s a…
 
  • add this feed to my.Alltop

    ROHO®

  • ROHO Helps Honor Disabled Veterans with Custom-Designed Cushion Donation

    Stephanie Tesreau
    17 Nov 2014 | 6:30 am
    SAN ANTONIO, TEXAS, November 17, 2014 – During a Veteran’s Day commemoration ceremony at the historic Alamo, 40 wounded service members were honored with the gift of custom-built Segway® transporters.  Of those, four were Ally Chair Adapted Segways outfitted with ROHO® cushions and ROHO® AGILITY™ backrests.  These donations were made possible by Segs4Vets to improve […] The post ROHO Helps Honor Disabled Veterans with Custom-Designed Cushion Donation appeared first on ROHO®.
  • Q & A with Emily Ladau

    Stephanie Tesreau
    31 Oct 2014 | 12:04 pm
    Blog site:  WordsIWheelBy.com How long have you been blogging? I’ve been blogging for just over a year and it’s been such an adventure! (Blog post: 5 Lessons I Learned From My 1st Year of Blogging) Describe yourself in 3 words. Passionate, persistent, dedicated Your favorite blog to visit? I absolutely love reading about the Smith […] The post Q & A with Emily Ladau appeared first on ROHO®.
  • Q & A with Blogger Priscilla Hedlin

    Stephanie Tesreau
    16 Oct 2014 | 12:48 pm
    Blog site:  WheelchairMommy.com How long have you been blogging? I started blogging before it was blogging. I had my first website in 1999 on a geocities site. Describe yourself in 3 words. Devoted, resourceful and passionate First thing you do when you wake up? Drink coffee and check my email. Last thing you do before you […] The post Q & A with Blogger Priscilla Hedlin appeared first on ROHO®.
  • Q & A with Jamie Goodwin

    Stephanie Tesreau
    16 Oct 2014 | 12:17 pm
    Blogging via Facebook.com/Wheelin’ Weightloss Why did you start blogging? I started writing and sharing my story to inspire others to lose weight and to have accountability partners in return. If you could give your page a permanent hashtag what would it be? #noexcueshere Gadget/”trick” you use that makes life in a wheelchair a little easier? Ask for help. People […] The post Q & A with Jamie Goodwin appeared first on ROHO®.
  • ROHO Elite Interview: John McRoberts

    Stephanie Tesreau
    1 Oct 2014 | 12:14 pm
    Meet John McRoberts, a medal-winning Paralympic Sailor for Canada.  John splits time between Victoria, British Columbia and St. Petersburg, FL.  Always an active person, John participated in everything from wheelchair rugby to racing before finally settling on sailing. To John sailing has longevity, “Other sports have a shelf life because of your age. Sailing can […] The post ROHO Elite Interview: John McRoberts appeared first on ROHO®.
  • add this feed to my.Alltop

    Need Project Podcast

  • Educating our children about sex with Dr. Diane Foley

    14 Nov 2014 | 2:59 pm
    Our guest today is Dr. Diane Foley. Dr. Foley is President/CEO of Life Network, a life affirming ministry in Colorado Springs, CO, which provides physical, financial, and emotional support for women and men facing unexpected pregnancies, mentoring for young parents, recovery counseling for those who have been affected by abortion, as well as sexual risk avoidance education presented in local middle and high schools.We discuss the options and best ways to teach our children about sex.
  • Toppling the Idol of Ideal with Melanie Boudreau Part II

    14 Oct 2014 | 11:00 am
    As an ASCP certified medical technologist, Melanie expected an exciting career in the health field. Instead, she soon discovered that parenting was an even greater passion. The mother of one child who was neurotypical and two with neuropsychiatric disorders, Melanie used her education to interact with specialists and to research interventions for her children. As parents raising children with these and other brain chemistry differences, we need compassionate voices who can listen and help us with the practical issues: fighting despair, judgment, and educational challenges; deciding about…
  • Toppling the Idol of Ideal with Melanie Boudreau

    14 Sep 2014 | 9:04 pm
    As an ASCP certified medical technologist, Melanie expected an exciting career in the health field. Instead, she soon discovered that parenting was an even greater passion. The mother of one child who was neurotypical and two with neuropsychiatric disorders, Melanie used her education to interact with specialists and to research interventions for her children. As parents raising children with these and other brain chemistry differences, we need compassionate voices who can listen and help us with the practical issues: fighting despair, judgment, and educational challenges; deciding about…
  • IEP with Melissa Horvath revisited

    15 Aug 2014 | 11:00 am
    Melissa Horvath has a masters degree in special education and has taught preschool through 6th grade in a variety of settings including regular classrooms and special schools.
  • Need Project update with Bob West

    14 Jul 2014 | 11:00 am
    Ministry President Bob West gives an update on current projects and what we are planning for the next year!
  • add this feed to my.Alltop

    Enabled Kids

  • Heroes

    Natan
    13 Nov 2014 | 12:25 pm
  • Children’s Deeds and Their Long Term Effects

    30 Oct 2014 | 12:33 pm
    Early childhood is arguably the most significant phase of development. Developmental events that take place at this age are a key determinant to the health, wellbeing and wholesomeness of the individual at advanced ages. Parents are keen with the development of their babies; however, some development concerns may seem trivial to them. During this sensitive […]
  • Never Discourage

    Natan
    30 Oct 2014 | 10:40 am
  • 5 Tips for Babysitting Special Needs Kids

    27 Oct 2014 | 1:23 pm
    Holly Easterby is a featured writer at various education and children websites. She loves to discuss healthy kids’ snacks, motivation for students, and children’s fashion, the latter of which she shares on Bonza Brats. In this article she advises us on how to babysit special needs kids. Are you a first-time babysitter to a child […]
  • Cerebral Palsy Athlete Completes Iron Man

    Natan
    24 Oct 2014 | 1:32 pm
    The Iron Man triathlon is a grueling race that begins with a 2.4 mile swim (3.86 km), followed by a 112 mile (180.25 km) bicycle ride, and ends with a 26.2 mile (42.2 km) marathon run. It has a strict 17 hour time limit and no breaks in between. The Iron Man race is easily […]
 
  • add this feed to my.Alltop

    Support for Special Needs

  • Thanksgiving 2014

    Robert Rummel-Hudson
    24 Nov 2014 | 5:00 am
    Thanksgiving for me has always been closely connected with my birthday; this year, it falls the day after my 47th. When I was younger, that holiday proximity was a mixed bag. It meant that I rarely had to attend school on my birthday, for example. And there’s something to be said for having a big meal and parades on tv for your birthday. On the other hand, I had to deal with having my birthday as something of a secondhand celebration, and it even got forgotten a couple of years when it fell on Thanksgiving itself. Very Sixteen Candles, at least at the time. Now that I’m older, my…
  • On realizing you’re different.

    Julia Roberts
    21 Nov 2014 | 7:00 am
    My daughter stepped into the car a couple of years ago during carpool where a snack and juice box waited for her to devour. “How was your day, honey?” I said, like I did every day she bounces in my car. On this day she is holding stapled sheets – like most Tuesdays or Wednesdays – along with her jacket and messenger bag. She isn’t in the car more than 5 seconds before she pushes the stapled sheets in my face, she says… “I hate that they blow up my work like this because it makes me feel dumb and no one else has to do this and why can’t I just…
  • My Responsibility as a Special Needs Parent

    Julia Roberts
    20 Nov 2014 | 2:00 pm
    It’s my responsibility… –       to love my kids as they are and never try to change the core of who they are, –       to make my kids’ lives as easy as possible where their disabilities are concerned, –       to ask that exceptions be made to to help them and improve our family’s quality of life, –       to help navigate the healthcare system for them while teaching them how to do it for themselves if they are capable, –       to protect them from people who want to do them harm; no matter the form,…
  • The Story of a Life in an Hour

    Julia Roberts
    19 Nov 2014 | 4:29 pm
    Last year I had to give an entire history on Gage during a consult for a potential doctor. Just a conversation. This sounded fine before I actually did it, you know? “Just share what’s happened in his life,” I told myself. Yet after I did it, I was broken-hearted reliving it all in just my words. My memory. Born, fine for 8 months in every baby book, then all of a sudden, he fell off the charts. One year, ocularmotor apraxia diagnosed. Late walking, late talking. Therapies. More therapies. Educational concerns sneak in. Age 3 diagnosed with ARPKD (Autosomal Recessive…
  • Meeting the Geneticist

    Julia Roberts
    17 Nov 2014 | 7:00 pm
    April 2013 We have a lot of specialists. More than most not as many as some but it includes a couple of geneticists. We’d met one of our first ones with Gage, when he was around 20 months old. That was some appointment. He walked into the room holding several books. Was it four? Six? I don’t remember, but I remember that they were thick. I do remember that it was a lot for the size of him. I’m not sure I remember how he greeted us or if he was engaging with Gage, who was sitting on my lap but I do remember how scared I felt about the appointment. Scared he would tell us…
  • add this feed to my.Alltop

    Friendship Circle -- Special Needs Blog

  • 10 Helpful and Compassionate Comments Heard at an IEP Meeting

    Karen Wang
    25 Nov 2014 | 6:53 am
    During most discussions about IEPs, we talk about the times that things went wrong and disgraceful things were said.  But not all IEPs are like that!  Recently a commenter on the Friendship Circle blog wrote, “Instead of ridiculous and offensive comments, why don’t you write about helpful and compassionate things heard at an IEP meeting?” After a few rough years and three different school districts, I have developed a good working relationship with my son’s IEP team.  My son does not receive 100% of the services that I request for him, but he is receiving an excellent education…
  • Does G-d Give Us Only What We Can Handle?

    Tzvi
    19 Nov 2014 | 11:55 am
    * As I am sure the first question of many will be why is G-d not spelled in full please note that this is a sign of respect. You can read more about spelling G-d’s name here. In March of 2013 Karen Wang wrote an article on this blog with the title 15 Reasons Why Its Hard To Get Along With Special Needs Parents. During this time we had over 120,000 individuals read this article, 32,000 people share this post and 293 readers leave a comment. One of the points of discussion in the comments was reason #12: “Another person with good intentions said, “G-d only gives us what we can…
  • 17 Fetal Alcohol Syndrome Organizations and Resources To Know About

    Sarah Buckley
    19 Nov 2014 | 4:41 am
    Every year over 40,000 infants are diagnosed with a completely preventable syndrome. Fetal alcohol spectrum disorders (FASDs) are a group of conditions that can occur in a person whose mother drank alcohol during pregnancy. FASDs are completely preventable if a woman does not drink alcohol during pregnancy. Unfortunately many women are either unaware or choose to ignore the dangers of drinking alcohol during pregnancy. There are numerous resources available for individuals looking for more information on FAS. Here is a list of organizations and resources to get you started. Fetal Alcohol…
  • add this feed to my.Alltop

    Advocacy in Action

  • Why do people with autism have trouble recognizing facial expressions?

    27 Nov 2014 | 3:13 am
    WikimediaProblems with social interactions are a major symptom of autism. These social deficits manifest differently in each child with autism, but often includeproblems carrying on conversationsnot being interested in play or other social interactions with other childrendifficulty making friends and/or maintaining friendshipsResearchers identified a reason for these problems - people with autism gather information from facial expressions differently than their peers.  "The evaluation of an individual's face is a rapid process that influences our future relationship with the individual,"…
  • The Magic of a Mother's Touch

    19 Nov 2014 | 11:20 am
    Kristzina Konczos on FlickrWhen mothers sooth their infants, their actions actually lessen the infants' pain, according to new research from the NYU Langone Medical Center. The mothers' care-giving not only influences the infants' behavior, but also affects the infants' brain development.“Our study shows that a mother comforting her infant in pain does not just elicit a behavioral response, but also the comforting itself modifies – for better or worse – critical neural circuitry during early brain development,” says Regina Sullivan, PhD, the senior investigator of…
  • 9 Ways to Prevent and Respond to Autism Wandering

    16 Nov 2014 | 3:30 pm
    John Morgan on FlickrAlmost half of all children with autism wander or elope -  they run away from their home, school or other safe place.  Wandering is particularly dangerous for children with autism because of poor communication and social skills as well as low safety awareness.Because of their difficulties with communication and social skills, children with autism may not respond if their names are called during a search.  They may be unable to ask for help if needed.  Some children with autism don't recognize the dangers posed by traffic, bodies of water,…
  • Hundreds of kids poisoned by laundry detergent pods

    12 Nov 2014 | 10:22 am
    Small, colorful laundry detergent pods are a poisoning risk for young children, reports a study published in Pediatrics on Nov. 10. Over 17,000 cases of children’s exposure to chemicals in the laundry pods were reported to U.S. poison control centers in 2012 and 2013, according to researchers at Nationwide Children’s Hospital in Ohio. In that same period, more than 750 children were hospitalized for injuries arising from exposure to chemicals in the laundry pods.Most of the injuries in this study resulted from one to two-year-olds ingesting the pods.
  • Realising Equality through Active Participation

    10 Nov 2014 | 9:03 am
    3rd December 20149.30am to 4.30pmDavenport Hotel, Merrion Street, Dublin 2Held to coincide with the International Day of Persons with Disabilities, this event from Áiseanna Tacaíochta (ÁT) will examine the evolution and lived experience of Independent Living and Direct Payments for people with disabilities in Ireland, and the ways in which society can come together in solidarity to promote equality and active citizenship for all.The event is set to be a day of great insight and opportunity, forging new ways to securing true inclusion and equality for everyone.  On top of…
 
  • add this feed to my.Alltop

    Holdin' Out for a Hero

  • It’s Never Too Early #RSVawareness #PreemieProtection

    Laurita
    14 Nov 2014 | 11:48 am
      This is part of a sponsored collaboration with MedImmune and Latina Mom Bloggers. However, all opinions expressed are my own.    As many of you know, one of my greatest passions in life is raising public awareness of spina bifida and the challenges that affect people living with SB, as well as the accomplishments, talents, and abilities of these very people. Along the way, I have become aware of so many other worthy causes, in particular other serious conditions and illnesses that also deserve awareness and publicity. It is in sharing information about these causes that I find…
  • I Don’t Always Have Spina Bifida

    Laurita
    9 Jul 2014 | 10:51 am
      Photo courtesy Macbeth Photography: MacbethPhoto.com  My life consists of many awesome events…and many funny photos!      Yes, I know. That’s quite the inflammatory title. This is a topic I’ve been reflecting on for a long time. I’ve read many articles and posts on both sides of this argument. I’ve read posts from adults with spina bifida, and parents of children with spina bifida, who say that spina bifida doesn’t define them.  I’ve also seen the other side of the coin, from parents who say that, indeed, spina bifida defines their…
  • The Power of Self-Acceptance Begins with You #loveurself

    Laurita
    23 May 2014 | 11:36 am
      Disclosure: I was given a #loveurself T-shirt for participating in this campaign. I will not be compensated for publishing this post. All ideas and opinions are my own.    There are moments when I’m looking at myself in the mirror and I don’t like what I see. In fact, I hate it. So much that I need to look away. It’s agonizing.  What’s very difficult for me to remember during moments like these– is that I’m not alone.  I’m pretty certain everyone has had moments like these, whether we choose to admit it or not. What I also…
  • Social Good at Hispanicize 2014: Be the Change

    Laurita
    15 Apr 2014 | 4:15 pm
    Hispanicize 2014 took place in Miami from April 1st through 4th, and this year, the organizers stepped it up by demonstrating that philanthropy is alive and well within the Latino community and beyond. On March 31st, I attended Social Media for Social Good Training for Non-Profits Serving Latino & Multicultural Communities, a half-day, pre-conference event, sponsored by Florida Blue and open to professionals involved with nonprofit organizations.     The presenters were Alex de Carvalho, founder of Social Media Club of South Florida, as well as Regional Development Director at…
  • Join Me in Getting Covered #TakeCareChat

    Laurita
    17 Mar 2014 | 1:07 pm
    Disclosure:This post is part of a campaign with Ad Council and Get Covered America. I will be compensated for publishing this post and for participating in the Twitter chat. All ideas and opinions are my own.    If there’s someone who truly understands the value of having good health insurance, it’s me– trust me. I certainly wouldn’t be here without the vigilant care of many good healthcare providers and nurses, and there were times in my childhood when I was literally in and out of the hospital every other week. Sadly, more than 1 in 6…
Log in